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Highlighted initiatives

Below you can check out some of the most active Initiatives in Patient Engagement.

From Anecdotal to Actionable: The Case for Patient Perspective Data

FasterCures Resource Library

  Clinical Outcome Assessment

EO

Patient-Perspective Value Framework (PPVF) Version 1.0

JR

Power of Ideas 2016

JR

Cornerstones of Collaboration: Foundation-led Partnerships to Accelerate R&D

JR

Partnering with Patients on Value, Coverage, and Reimbursement

JR

Patient Engagement Highlights

Discover the most popular and active organisations, people, initiatives and resources.

Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action - Article

12 Jan 2018

Advancing the Strategic Value of Patient-Informed Protocol Design: Exploring Implementation Facilitators and Barriers

02 Jul 2020 Video

Working with patients and patient organisations - a sourcebook for industry

28 Jun 2019 Framework/guidance

Kevin Freiert

Principal

Salem, United States

Salem Oaks Consulting

Project Patient Voice

25 Jun 2020 Other

Regina Greer-Smith LFACHE

2018 Clinical Trials Engagement Innovator

Apple Valley, United States

Healthcare Research Associates, LLC/The S.T.A.R. Initiative E3 Engagement Program

JB

Jennifer Burgess

Vice President | Global Communications & Engagement

Conshohocken, United States

TransCelerate BioPharma, Inc.

Guidance on authorship with and acknowledgement of patient partners in patient-oriented research

02 Jul 2020 Publication

Debra Michaels

Senior Scientist; Patient Engagement Thought Leadership Lead

Horsham, United States

DIA

Pledge icon

PEOF 2020-How to engage patients in the early stages-WG1-Slides and Recording

03 Jul 2020 Other

EP

Eleanor Perfetto

Senior Vice President, Strategic Initiatives

Washington, United States

National Health Council

Patient Compensation Tools (Fair Market Value)

30 Jun 2020 Framework/guidance

A sickle cell community built by the community for the community

16

Sep09:00 AM

17

Sep05:00 PM

9th Global Patients Congress GPC2020

18

Jun02:00 PM

18

Jun02:00 PM

EURORDIS Digital School Webinar: Helping Patient Organisations Plan and Create for Social Media Success

15

Sep09:00 AM

16

Sep04:00 PM

Pharma & Patient Europe 2020

30

Jun11:30 AM

30

Jun01:30 PM

Advancing the Strategic Value of Patient-Informed Protocol Design: Exploring Implementation Facilitators and Barriers

Integrating the Patient Perspective into the Development of Value Frameworks

JR

Power of Ideas 2016

JR

07

May02:00 PM

07

May02:00 PM

PATIENT ENGAGEMENT BEST PRACTICES: THE BENEFITS WITHOUT THE RISKS

Ethnography and advocacy in sickle cell disease

20 Jul 2020 Article and blog post

National Health Council Patient-Centered Value Model Rubric

19

Aug10:00 AM

21

Aug02:30 PM

Patients as Partners US

Patient Engagement in COVID Times: Looking Behind the Numbers

30 Jul 2020 Publication

25

Jun09:00 AM

23

Nov09:00 AM

Patient Engagement Open Forum 2020

JR

Julien Rashid

Julien Rashid

Washington, United States

FasterCures

30

Jul10:00 AM

30

Jul11:00 AM

Navigating US FDA Initiatives to Expedite Development, Approval, and Emergency Access to COVID-19 Treatments

Most visited this month

You can find below the most visited this month organisations, people, initiatives, events and resources.

A sickle cell community built by the community for the community

Understanding stakeholders expectations for patient engagement - Qualitative Survey

28 Mar 2018

19

Aug10:00 AM

21

Aug02:30 PM

Patients as Partners US

Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

20

Apr09:00 AM

22

Apr05:00 PM

16th Annual Meeting of ISMPP

FasterCures Resource Library

02

Mar08:00 AM

03

Mar05:00 PM

Enrollment Planning and Patient Recruitment

Consultancy Agreement between a patient advocate and a pharmaceutical company

24 Mar 2020 Framework/guidance

Most connected people

You can find below the people that have the most connection on the platform.

Marc Boutin

Chief Executive Officer

United States

National Health Council

EO

Elisabeth Oehrlein

Associate, Programs

Washington, United States

National Health Council / PFMD

Roslyn Schneider

Global Patient Affairs Lead, Pfizer Medical

New York, United States

Pfizer

Pledge icon

Marilyn Metcalf

Patient Engagement Lead

Research Triangle Park, NC, United States

GlaxoSmithKline

Paul Robinson

Assoc. Director, Scientific Medical & Patient Perspective

Philadelphia, United States

Merck Sharp & Dohme (MSD)

EP

Eleanor Perfetto

Senior Vice President, Strategic Initiatives

Washington, United States

National Health Council

JB

Jennifer Burgess

Vice President | Global Communications & Engagement

Conshohocken, United States

TransCelerate BioPharma, Inc.

Regina Greer-Smith LFACHE

2018 Clinical Trials Engagement Innovator

Apple Valley, United States

Healthcare Research Associates, LLC/The S.T.A.R. Initiative E3 Engagement Program

Katie Hill

Associate Director, DIA Learning

Horsham, United States

DIA

Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

Kevin Freiert

Principal

Salem, United States

Salem Oaks Consulting

JR

Julien Rashid

Julien Rashid

Washington, United States

FasterCures

Alissa Hanna

Senior Manager, Patient Engagement

Irvine, United States

Edwards Lifesciences

WP

Wendy Poage

Head US Patient Advocacy and Patient Services

Boston, United States

Servier

Pledge icon

Laura Wuerth

South Norwalk, United States

rareLife solutions

Elisabeth Oehrlein

Senior Director, Research and Programs at National Health Council

Baltimore, United States

University of Maryland, Baltimore, Dept. Pharmaceutical Health Services Research

BH

Beverly Harrison

Titusville, United States

Janssen - Johnson & Johnson

JN

Jan Nissen

VP Patient Innovation & Engagement

North Wales, United States

Merck Sharp & Dohme (MSD)

Anthony Yanni

SVP and Global Head, Patient Centricity

55 Corporate Drive Bridgewater, NJ, United States

Astellas

Debra Michaels

Senior Scientist; Patient Engagement Thought Leadership Lead

Horsham, United States

DIA

Pledge icon

Lesley Valle

Patient Affairs & Engagement

Ridgefield, United States

Boehringer Ingelheim

NA

Nina Ahluwalia

Head, Product Development Patient Insights

San Francisco, United States

Genentech, A Member of the Roche Group

Pledge icon
AM

Andres Montoya

Andres Montoya

new york, United States

Janssen - Johnson & Johnson

TR

Traceann Rose

Traceann Rose

New York, United States

Children's Tumor Foundation

Pledge icon

Dan Donovan

Founder & CEO at rareLife Solutions

South Norwalk, United States

rareLife solutions

Kelly Burkitt

Veteran Engagement

Pittsburgh, United States

CC

Clarissa Cooblall

Associate Director, Scientific and Health Policy Initiatives

Lawrenceville, United States

ISPOR

JB

Jeri Burtchell

Director, Patient Initiatives

Arlington, United States

HealthiVibe, LLC

Andrew Elias

Lansdale, United States

Janssen - Johnson & Johnson

LN

Linda Nielsen

Sr Director, VEO-Patient Centered Outcomes

Collegeville, United States

GlaxoSmithKline

Katie Mazuk

Senior Director, Investigator & Patient Engagement

Titusville, United States

Janssen - Johnson & Johnson

Pledge icon

Dyan Bryson

Patient Engagement Strategist

United States

Inspired Health Strategies

JO

Jan Oldenburg

Digital Patient Engagement Expert

MIDLOTHIAN, United States

Participatory Health Consulting, LLC

BL

Barry Liden

Vice President, Patient Engagement

Washington, United States

Edwards Lifesciences

Pledge icon
RS

Roslyn Schneider

Roslyn F. Schneider MD, MSc

Scarsdale, United States

RozMD Patient Affairs Consulting LLC

JM

Jen McGrain

Nottingham, United States

Breath Therapeutics

HW

Hilary Wilson

Seattle, United States

AP

Alice Pomponio

Overcoming Barriers to Patient Access, Affordability, and Adherence

Medway, United States

Accendo Bio

RA

Communications and Pt Advocacy Leader

East Hanover, United States

Novartis

Pledge icon

Lode Dewulf

Patient and Medical Affairs Consultant

Neerijse, Belgium

PFMD / Corvalus / Servier

Pledge icon

Begoña Nafría Escalera

Patient Expert Reviewer en Research Involvement and Engagement Journal

Esplugues de Llobregat, Spain

Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation

Pledge icon

Graham Wylie

CEO

Skokie, United States

MRN

Pledge icon

Jincy Paulose

US Medical Director for Sickle Cell Disease and Iron Overload

East Hanover, United States

Novartis

RL

Renata Lima

Renata Lima

RIO DE JANEIRO, Brazil

Servier

Nicola Bedlington

Secretary General at European Patients' Forum

Brussels, Belgium

European Patients' Forum (EPF) / PFMD / EUPATI

Mathieu Boudes

PARADIGM coordinator (http://imi-paradigm.eu/)

Paris, France

European Patients' Forum (EPF) / PFMD

SG

Suzanne Giordano

executive director Medical affairs

marlborough, United States

Sunovion

Bettina Ryll

Founder Melanoma Patient Network Europe

Amgen / Melanoma Patient Network Europe (MPNE)

Eupati

Paula Wray

Senior Manager

Oxford, United Kingdom

NIHR INVOLVE / The National Institute for Health Research (NIHR)

Pledge icon
TG

Todd Greenwood

Patients. Behavior. Digital.

Princeton, United States

Medullan

Conditions

Explore the list of conditions in Synapse.

Future events

Future events you might be interested in

02

Mar08:00 AM

03

Mar05:00 PM

Enrollment Planning and Patient Recruitment

23

Aug10:00 AM

27

Aug01:30 PM

ISEE Anual Conference

12

May10:00 AM

12

May10:00 AM

Developing and Implementing a Patient Engagement Strategy

07

May02:00 PM

07

May02:00 PM

PATIENT ENGAGEMENT BEST PRACTICES: THE BENEFITS WITHOUT THE RISKS

20

Apr09:00 AM

22

Apr05:00 PM

16th Annual Meeting of ISMPP

21

Sep07:00 AM

24

Sep04:30 PM

RAPS Regulatory Convergence

23

Jun08:00 AM

27

Jun12:00 PM

DIA 2019 Global Annual Meeting

14

Nov08:00 AM

18

Nov05:00 PM

ISPOR Europe 2020

21

Oct08:00 AM

24

Oct05:00 PM

ISOQOL 2020 Annual Conference

20

Oct08:00 AM

22

Oct05:00 PM

World Cancer Congress

30

Sep08:00 AM

02

Oct04:00 PM

Patient Experience Symposium 2020

18

Sep10:00 AM

18

Sep11:00 AM

Understand diabetes, rethink diabetes, share solutions

16

Sep09:00 AM

17

Sep05:00 PM

9th Global Patients Congress GPC2020

16

Sep08:00 AM

17

Sep05:00 PM

Smart Data Driving Healthy Cities

15

Sep09:00 AM

16

Sep04:00 PM

Pharma & Patient Europe 2020