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Highlighted initiatives

Below you can check out some of the most active Initiatives in Patient Engagement.

  Patient Engagement How-To Module for the creation of Plain Language Summaries for scientific publications

  The Patient Engagement Quality Guidance (PEQG)

  Co-creation of the Patient Engagement "Meta-Framework"

  SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

  PFMD - Patient Focused Medicines Development

  Health Innovation Coalition – Health Crisis

  Patient Engagement How-To Module for Capacity Building

Patient Engagement Highlights

Discover the most popular and active organisations, people, initiatives and resources.

Jessica Scott

COVID-19-COS

28

May05:00 PM

28

May05:00 PM

EUPATI Fundamentals – Training for Professionals

Michaela Dinboeck

Senior Director Group Patient Advocacy & Communications

Basel, Switzerland

Novartis

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Digital Health from a Patient Perspective with recommendations on digital health

18 Oct 2019 Publication

NB
AM

Ppt Hackathon

21 May 2020 Other

23

Jun08:00 AM

27

Jun12:00 PM

DIA 2019 Global Annual Meeting

Zsofia Bakonyi

Senior Manager - Partnerships

Brussels, Belgium

EFPIA - European Federation of Pharmaceutical Industries and Associations

18

Jun02:00 PM

18

Jun02:00 PM

EURORDIS Digital School Webinar: Helping Patient Organisations Plan and Create for Social Media Success

MO

Marilynn Oliphant

Patient Engagement Operations Lead

Cambridge, United States

Takeda Pharmaceuticals

12

May10:00 AM

12

May10:00 AM

Developing and Implementing a Patient Engagement Strategy

  Patient Engagement How-To Module for the creation of Plain Language Summaries for scientific publications

  The Patient Engagement Quality Guidance (PEQG)

Juliette Maillet

Patient Engagement Project Leader | R&D

France

Servier

  Co-creation of the Patient Engagement "Meta-Framework"

Conducting rigorous qualitative research with and for patients to provide novel patient-centered perspectives and insights on diseases and treatments

RL

Renata Lima

Renata Lima

RIO DE JANEIRO, Brazil

Servier

12

Nov08:30 AM

14

Nov02:00 PM

EPF Congress

30

Apr04:30 PM

30

Apr05:00 PM

DISQOVER COVID-19 Edition Q and A session

EMSP membership communications network teleconference report

09 Apr 2020 Other

15

Nov09:00 AM

15

Nov05:00 PM

PFMD Board Meeting

Katherine Capperella

Global Patient Engagement Leader

United States

Janssen - Johnson & Johnson

Pledge icon

11

May01:00 PM

11

May01:00 PM

Global Regulatory Coordination to Facilitate Access to COVID-19 Diagnostics and Therapies

05

Jun04:00 PM

05

Jun04:00 PM

[HTAi COVID-19 RESPONSE] Evaluating Rapid Digitization in Hospital Settings

Tony Hoos

Head of Medical for Europe at Amgen

Zug, Switzerland

PFMD

13

Dec02:00 PM

13

Dec03:00 PM

Perspectives on the FDA’s 2nd PFDD Guidance

Most visited this month

You can find below the most visited this month organisations, people, initiatives, events and resources.

Paul Robinson

Assoc. Director, Scientific Medical & Patient Perspective

Philadelphia, United States

Merck Sharp & Dohme

David Palacios

Head Global Patient Advocacy Pharma at Novartis based in Basel

Basel, Switzerland

Novartis

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Walking the Patient Path: Integrating the Voice of Patients to Optimize Study Design, Recruitment and Retention

12 May 2020 Video

Bettina Ryll

Founder Melanoma Patient Network Europe

Amgen / Melanoma Patient Network Europe (MPNE)

Eupati

ADAPT-SMART (IMI)

Putting patients at the centre of clinical trials - Factsheet

04 Sep 2018

Collaboration Agreement between a patient advocate and a pharmaceutical company

24 Mar 2020 Framework/guidance

Lode Dewulf

Patient and Medical Affairs Consultant

Neerijse, Belgium

PFMD / Corvalus / Servier

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Most connected people

You can find below the people that have the most connection on the platform.

Lode Dewulf

Patient and Medical Affairs Consultant

Neerijse, Belgium

PFMD / Corvalus / Servier

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Marc Boutin

Chief Executive Officer

United States

National Health Council

Nicola Bedlington

Secretary General at European Patients' Forum

Brussels, Belgium

European Patients' Forum (EPF) / PFMD / EUPATI

Carole Scrafton

Carole Scrafton

Sunderland, United Kingdom

FibroFlutters

Sheila Khawaja

✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow

San Canzian dIsonzo, Italy

The World Alliance of Pituitary Organizations (WAPO)

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Laure Delbecque

Research Scientist - Patient Focused Outcomes Center of Expertise

Belgium

Pharmerit International / Eli Lilly and Company

EO

Elisabeth Oehrlein

Associate, Programs

Washington, United States

National Health Council / PFMD

Laura Evans

Sheffield, United Kingdom

NIHR Sheffield Biomedical Research Centre (BRC)

Zsofia Bakonyi

Senior Manager - Partnerships

Brussels, Belgium

EFPIA - European Federation of Pharmaceutical Industries and Associations

Roslyn Schneider

Global Patient Affairs Lead, Pfizer Medical

New York, United States

Pfizer

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Jan Geissler

Co-Founder

Munich, Germany

PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI

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Eupati

Marilyn Metcalf

Patient Engagement Lead

Research Triangle Park, NC, United States

GlaxoSmithKline

Paul Robinson

Assoc. Director, Scientific Medical & Patient Perspective

Philadelphia, United States

Merck Sharp & Dohme

Paula Wray

Senior Manager

Oxford, United Kingdom

INVOLVE / The National Institute for Health Research (NIHR)

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RL

Renata Lima

Renata Lima

RIO DE JANEIRO, Brazil

Servier

Irma Chighladze

Tbilisi, Georgia

Gary Finnegan

Editor

Ireland

The Synergist / PFMD

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Regina Greer-Smith LFACHE

2018 Clinical Trials Engagement Innovator

Apple Valley, United States

Healthcare Research Associates, LLC/The S.T.A.R. Initiative E3 Engagement Program

Alexandra Moutet

Global Head of Patient Affairs

UCB

Jennifer Preston

Senior Patient and Public Involvement Manager

Liverpool, United Kingdom

University of Liverpool, Institute of Translational Medicine

Bennett Levitan

Senior Director, Benefit-risk Assessment

Janssen - Johnson & Johnson

Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

David Palacios

Head Global Patient Advocacy Pharma at Novartis based in Basel

Basel, Switzerland

Novartis

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Toni Montserrat

Patient and Patient Advocate

Sant Cugat del Vallés, Spain

Pacientes LMC

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Daniela Shikova

Managing Director of FindMeCure Foundation / Fostering clinical trials education and patient engagement in research

Sofia, Bulgaria

FindMeCure / FindMeCure Foundation

EP

Eleanor Perfetto

Senior Vice President, Strategic Initiatives

Washington, United States

National Health Council

JR

Julien Rashid

Julien Rashid

Washington, United States

FasterCures

Katie Hill

Associate Director, DIA Learning

Horsham, United States

DIA

Simone Liedecke

Novartis Pharma GmbH

Nuremberg, Germany

Novartis

Mandy Daly

Passionate about PPI

Bray, Ireland

Irish Neonatal Health A / Irish Neonatal Health Alliance

Katherine Deane

Senior Lecturer in Research at University of East Anglia

University of East Anglia

Abdullah Al-bow

abdullah albow

jeddah, Saudi Arabia

Servier

AM

Andres Montoya

Andres Montoya

new york, United States

Janssen - Johnson & Johnson

Sanja Njegic

Global Head Patient Partnership

F. Hoffmann La Roche

Dan Donovan

Founder & CEO at rareLife Solutions

South Norwalk, United States

rareLife solutions

OB

Oana Bernard-Poenaru

Oana BERNARD

Suresnes, France

Servier

Andrew Elias

Lansdale, United States

Janssen - Johnson & Johnson

Ursula Davis

Ursula Davis- passionate about making a difference

Overijse, Belgium

EL8 Consulting

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Gabor Purman

Behavioural economist who loves to understand and change human health behaviour

London, United Kingdom

NexGen Healthcare communications

Jessica Scott

Sonia Sgro

Global Head of Patient Advocacy presso Zambon

MV

Maria Vittoria Colombo

Head of Patient Strategy Sandoz Italy

Italy

Novartis

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HF

Hitoshi Fujita

Minato-ku, Japan

Novartis

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Duane Sunwold

Sharareh Hosseinzadeh

Global Head Clinical Patient Engagement -Chief Medical Office at Novartis

Dorval, Canada

Novartis

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Delia Dumitru

Patient Relations and Communication Lead

Bucharest, Romania

Novartis

Bettina Ryll

Founder Melanoma Patient Network Europe

Amgen / Melanoma Patient Network Europe (MPNE)

Eupati

Adela GAIA

Patient Group Relations Manager

SURESNES, France

Servier

TF

tiziana fragiacomo

Tiziana Fragiacomo

Milan, Italy

Novartis

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Conditions

Explore the list of conditions in Synapse.
Gastro-esophageal Reflux Disease (GERD)
0 Organizations1 User1 Initiative0 Events0 Resources

Future events

Future events you might be interested in

05

Jun04:00 PM

05

Jun04:00 PM

[HTAi COVID-19 RESPONSE] Evaluating Rapid Digitization in Hospital Settings

05

Jun02:00 PM

05

Jun02:00 PM

[WEBINAR] Working together to beat COVID-19: engaging and involving patients and public

10

Jun07:00 PM

10

Jun08:00 PM

Global Patient Advocacy in the COVID Era: What Is the Future of Patient Advocacy around the World?

18

Jun02:00 PM

18

Jun02:00 PM

EURORDIS Digital School Webinar: Helping Patient Organisations Plan and Create for Social Media Success

28

May05:00 PM

28

May05:00 PM

EUPATI Fundamentals – Training for Professionals

20

May04:00 PM

20

May04:00 PM

COVID-19 & Clinical Research:

19

May11:00 AM

19

May12:00 PM

Clinical Trials at the time of COVID-19 - and beyond

25

Jun09:00 AM

25

Jun09:00 AM

Patient Engagement Open Forum 2020

14

Jun09:00 AM

18

Jun05:00 PM

DIA Global Annual Meeting 2020

18

May12:30 PM

18

May12:30 PM

Cancer and COVID-19: Looking Past the Pandemic - Cancer care for 2022 and Beyond

11

May01:00 PM

11

May01:00 PM

Global Regulatory Coordination to Facilitate Access to COVID-19 Diagnostics and Therapies

22

Apr11:30 AM

22

Apr12:30 PM

Cancer and COVID-19 - "Short-Term Reality, Long-Term Vision"

13

May11:00 AM

13

May12:00 PM

DIA DIRECT: Study and Data Integrity Considerations for Clinical Trials Impacted by COVID-19

30

Apr04:30 PM

30

Apr05:00 PM

DISQOVER COVID-19 Edition Q and A session

04

May11:30 AM

04

May12:30 PM

Balancing the reality of the pandemic’s budgets and the ongoing needs of cancer patients