Highlighted initiatives

Below you can check out some of the most active Initiatives in Patient Engagement.

  Co-creation of the Patient Engagement "Meta-Framework"

  PFMD - Patient Focused Medicines Development

  The Patient Engagement Quality Guidance (PEQG)

  Health Innovation Coalition – Health Crisis

  PE Stakeholder Expectation Matrix

  Co-creation Working Group 1: Early development & preclinical phases

Most connected people

You can find below the people that have the most connection on the platform.
RL

Renata Lima

Renata Lima

RIO DE JANEIRO, Brazil

Servier

Jan Geissler

Co-Founder

Munich, Germany

PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI

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Eupati

Marc Boutin

Chief Executive Officer

United States

National Health Council

Carole Scrafton

Carole Scrafton

Sunderland, United Kingdom

FibroFlutters

Mathieu Boudes

PARADIGM coordinator (http://imi-paradigm.eu/)

Paris, France

European Patients' Forum (EPF) / PFMD

Nicola Bedlington

Secretary General at European Patients' Forum

Brussels, Belgium

European Patients' Forum (EPF) / PFMD / EUPATI

Natasha Ratcliffe

Research Involvement Manager

London, United Kingdom

Parkinsons UK

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Paul Robinson

Assoc. Director, Scientific Medical & Patient Perspective

Philadelphia, United States

Merck Sharp & Dohme

Laura Evans

Sheffield, United Kingdom

NIHR Sheffield Biomedical Research Centre (BRC)

Roslyn Schneider

Global Patient Affairs Lead, Pfizer Medical

New York, United States

Pfizer

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Marilyn Metcalf

Patient Engagement Lead

Research Triangle Park, NC, United States

GlaxoSmithKline

EO

Elisabeth Oehrlein

Associate, Programs

Washington, United States

National Health Council / PFMD

Katherine Deane

Senior Lecturer in Research at University of East Anglia

University of East Anglia

Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

Sheila Khawaja

✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow

San Canzian dIsonzo, Italy

The World Alliance of Pituitary Organizations (WAPO)

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Daniela Shikova

Managing Director of FindMeCure Foundation / Fostering clinical trials education and patient engagement in research

Sofia, Bulgaria

FindMeCure / FindMeCure Foundation

Mandy Daly

Passionate about PPI

Bray, Ireland

Irish Neonatal Health A / Irish Neonatal Health Alliance

David Palacios

Head Global Patient Advocacy Pharma at Novartis based in Basel

Basel, Switzerland

Novartis

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Toni Montserrat

Patient and Patient Advocate

Sant Cugat del Vallés, Spain

Pacientes LMC

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Laure Delbecque

Research Scientist - Patient Focused Outcomes Center of Expertise

Belgium

Pharmerit International / Eli Lilly and Company

MG

Marta Garcia

Clinical Operations Patient Centric Responsable. Servier International

Stoke Poges, United Kingdom

Servier

HF

Hitoshi Fujita

Minato-ku, Japan

Novartis

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Bettina Ryll

Founder Melanoma Patient Network Europe

Amgen / Melanoma Patient Network Europe (MPNE)

Eupati

Juliette Maillet

Patient Engagement Project Leader | R&D

France

Servier

Bennett Levitan

Senior Director, Benefit-risk Assessment

Janssen - Johnson & Johnson

Rebecca Vermeulen

Head Global Medical Liaisons and Communications

F. Hoffmann La Roche

Gabor Purman

Behavioural economist who loves to understand and change human health behaviour

London, United Kingdom

NexGen Healthcare communications

CB

Christine BREUGNOT

In charge of Scientific Partnership

Suresnes, France

Paula Wray

Senior Public Involvement Manager

Southampton, United Kingdom

INVOLVE / The National Institute for Health Research (NIHR)

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KW

Kay Warner

Senior Director - Patient Engagement

London,

GlaxoSmithKline

WP

Wendy Poage

Head US Patient Advocacy and Patient Services

Boston, United States

Servier

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Nikita Reznik

ZS Associates

Zsofia Bakonyi

Senior Manager - Partnerships

Brussels, Belgium

EFPIA - European Federation of Pharmaceutical Industries and Associations

JL

Joaquin Lizondo

Patient Advocacy Manager at Novartis

Barcelona, Spain

Novartis

Dominique Hamerlijnck

Patient advocate/experience expert

Amsterdam, Netherlands

Dutch Lung Foundation LED-group

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Eupati

Abdullah Al-bow

abdullah albow

jeddah, Saudi Arabia

Servier

Irma Chighladze

Tbilisi, Georgia

Katie Hill

Associate Director, DIA Learning

Horsham, United States

DIA

Jean-Pierre Malkowski

#4patientsBypatients

Basel, Switzerland

Novartis

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Vee Mapunde

Programme Director at NIHR Surgical MedTech Co-operative

Leeds, Zimbabwe

NIHR Surgical MedTech Co-operative

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Meike Wenzel

Partner

Baar, Switzerland

Executive Insight

SD

Stéphanie Durand

International Product Manager

SURESNES, France

Servier

CC

Charline Coquerel

Director, Global Patient Relations

Denmark

Novo Nordisk / Paradigm

Sanja Njegic

Global Head Patient Partnership

F. Hoffmann La Roche

Michaela Dinboeck

Senior Director Group Patient Advocacy & Communications

Basel, Switzerland

Novartis

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SW

Severine Wollenschneider

+41616875257

Basel, Switzerland

F. Hoffmann La Roche

Elisabeth Oehrlein

Senior Director, Research and Programs at National Health Council

Baltimore, United States

University of Maryland, Baltimore, Dept. Pharmaceutical Health Services Research

Emmanuelle Bensaude

Strategic Innovation Specialist

Pont de Claix, France

BD

Sharareh Hosseinzadeh

Global Head Clinical Patient Engagement -Chief Medical Office at Novartis

Dorval, Canada

Novartis

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Conditions

Explore the list of conditions in Synapse.
Parkinson's Disease
Psoriasis
1 Organization 3 Users
0 Initiatives
0 Resources
Hepatitis
0 Organizations
1 User
0 Initiatives
0 Resources
Chronic kidney disease (CKD)
Osteoarthritis
1 Organization 1 User
0 Initiatives
0 Resources
HIV/ AIDS
2 Organizations
0 Users
0 Initiatives
0 Resources
Myocardio Infarction/ Heart attack
0 Organizations
2 Users
0 Initiatives
0 Resources
Duchenne muscular dystrophy
0 Organizations
0 Users
3 Initiatives
0 Resources
Hyperlipidemia/ dyslipidemia
0 Organizations
2 Users
0 Initiatives
0 Resources
Gastro-esophageal Reflux Disease (GERD)
0 Organizations
1 User
0 Initiatives
0 Resources
Tuberculosis
1 Organization
0 Users
0 Initiatives
0 Resources
Fabry Disease
0 Organizations
1 User
0 Initiatives
0 Resources
Cystic Fibrosis
1 Organization 1 User
0 Initiatives
0 Resources
Menopause
0 Organizations
0 Users
1 Initiative
0 Resources
Hypoglycemia
1 Organization 1 User
0 Initiatives
0 Resources
Juvenile Idiopathic Arthritis (JIA)
2 Organizations
0 Users
0 Initiatives
0 Resources
Prostate cancer
0 Organizations
0 Users
1 Initiative
0 Resources
Psoriatic Arthritis
2 Organizations
0 Users
0 Initiatives
0 Resources
Acromegaly
0 Organizations
1 User
0 Initiatives
0 Resources

Future events

Future events you might be interested in

09

Sep08:30 AM

09

Sep05:00 PM

Drive Patient Centricity & Engagement With Meaningful Patient Involvement

31

Mar08:00 AM

02

Apr02:00 PM

EYEFORPHARMA BARCELEONA 2020

27

Mar12:00 PM

27

Mar01:00 PM

CORONAVIRUS PREPAREDNESS FOR PEOPLE WITH CHRONIC DISEASES

26

Mar08:30 AM

26

Mar08:30 AM

DIA DIRECT: COVID-19: Experts from China Speak on Conducting Clinical Trials During the Pandemic

26

Mar01:00 PM

26

Mar01:30 PM

ISNTD Connect- COVID-19 and dengue fever:

27

Mar02:00 PM

27

Mar02:00 PM

Covid - 19 A systemic Crisis

23

Mar02:00 PM

23

Mar02:00 PM

NHC PFMPD Webinar Series: What is the Role of Patient-Reported Data in Outcome-Based Contracts?

20

Mar12:00 PM

20

Mar01:00 PM

Webinar on ICER's Value Assessment Framework:

14

Jun09:00 AM

18

Jun05:00 PM

DIA Global Annual Meeting 2020

16

Sep08:00 AM

17

Sep05:00 PM

Smart Data Driving Healthy Cities