Highlighted initiatives

Below you can check out some of the most active Initiatives in Patient Engagement.

  SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

  The Patient Engagement Quality Guidance (PEQG)

  Co-creation Working Group 1: Early development & preclinical phases

  Co-creation Working Group 2: Clinical Trials I-III (Clinical Outcomes Assessment)

  Co-creation of the Patient Engagement "Meta-Framework"

Patient Engagement Highlights

Discover the most popular and active organisations, people, initiatives and resources.

Guiding Principles on Reasonable Agreements between Patient Advocates and Pharmaceutical Companies

20 Mar 2020 Framework/guidance

  PFMD - Patient Focused Medicines Development

Tony Hoos

Head of Medical for Europe at Amgen

Zug, Switzerland

Amgen

What do stakeholders expect from patient engagement: Are these expectations being met? - Report

03 Sep 2018

Carol Meyer

R&D Patient Engagement Lead

Deerfield, United States

Takeda Pharmaceuticals

  Co-creation Working Group 1: Early development & preclinical phases

MO

Marilynn Oliphant

Patient Engagement Operations Lead

Cambridge, United States

Takeda Pharmaceuticals

Most connected people

You can find below the people that have the most connection on the platform.

Jan Geissler

Co-Founder

Munich, Germany

PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI

Pledge icon
Eupati

Marc Boutin

Chief Executive Officer

United States

National Health Council

Nicola Bedlington

Secretary General at European Patients' Forum

Brussels, Belgium

European Patients' Forum (EPF) / PFMD / EUPATI

EO

Elisabeth Oehrlein

Associate, Programs

Washington, United States

National Health Council / PFMD

Sheila Khawaja

✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow

San Canzian dIsonzo, Italy

The World Alliance of Pituitary Organizations (WAPO)

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Bettina Ryll

Founder Melanoma Patient Network Europe

Amgen / Melanoma Patient Network Europe (MPNE)

Eupati

Laura Evans

Sheffield, United Kingdom

NIHR Sheffield Biomedical Research Centre (BRC)

Mathieu Boudes

PARADIGM coordinator (http://imi-paradigm.eu/)

Paris, France

European Patients' Forum (EPF) / PFMD

Lode Dewulf

Patient and Medical Affairs Consultant

Neerijse, Belgium

PFMD / Corvalus / Servier

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Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

Zsofia Bakonyi

Senior Manager - Partnerships

Brussels, Belgium

EFPIA - European Federation of Pharmaceutical Industries and Associations

Irma Chighladze

Tbilisi, Georgia

JR

Julien Rashid

Julien Rashid

Washington, United States

FasterCures

RL

Renata Lima

Renata Lima

RIO DE JANEIRO, Brazil

Servier

Toni Montserrat

Patient and Patient Advocate

Sant Cugat del Vallés, Spain

Pacientes LMC

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Laure Delbecque

Research Scientist - Patient Focused Outcomes Center of Expertise

Belgium

Pharmerit International / Eli Lilly and Company

Alexandra Moutet

Global Head of Patient Affairs

UCB

Paula Wray

Senior Public Involvement Manager

Southampton, United Kingdom

INVOLVE / The National Institute for Health Research (NIHR)

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T Anthony (Tony) Howell

Digital Community Builder

WESTPORT, United States

Responsum Health

EP

Eleanor Perfetto

Senior Vice President, Strategic Initiatives

Washington, United States

National Health Council

HF

Hitoshi Fujita

Minato-ku, Japan

Novartis

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Carole Scrafton

Carole Scrafton

Sunderland, United Kingdom

FibroFlutters

Marilyn Metcalf

Patient Engagement Lead

Research Triangle Park, NC, United States

GlaxoSmithKline

Paul Robinson

Assoc. Director, Scientific Medical & Patient Perspective

Philadelphia, United States

Merck Sharp & Dohme

KW

Kay Warner

Senior Director - Patient Engagement

London,

GlaxoSmithKline

Bennett Levitan

Senior Director, Benefit-risk Assessment

Janssen - Johnson & Johnson

Jennifer Preston

Senior Patient and Public Involvement Manager

Liverpool, United Kingdom

University of Liverpool, Institute of Translational Medicine

Daniela Shikova

Managing Director of FindMeCure Foundation / Fostering clinical trials education and patient engagement in research

Sofia, Bulgaria

FindMeCure / FindMeCure Foundation

Regina Greer-Smith LFACHE

2018 Clinical Trials Engagement Innovator

Apple Valley, United States

Healthcare Research Associates, LLC/The S.T.A.R. Initiative E3 Engagement Program

Laura Wuerth

South Norwalk, United States

rareLife solutions

Rebecca Vermeulen

Head Global Medical Liaisons and Communications

F. Hoffmann La Roche

Laura McKeaveney

Global Head of Patient Advocacy at Novartis

Basel, Switzerland

Novartis

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Matthew May

EUPATI Programme Coordinator

Switzerland

EUPATI

Nikita Reznik

ZS Associates

Roslyn Schneider

Global Patient Affairs Lead, Pfizer Medical

New York, United States

Pfizer

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Adela GAIA

Patient Group Relations Manager

SURESNES, France

Servier

PS

Pierre Skafar

International Product Manager - Metabolism

Servier

Matt Eagles

Positivity Activist & Head of Patient Engagement at HAVAS LYNX

Manchester, United Kingdom

Alina Eylitz

Intern Oncology GMA Patient Eng Projects

Basel, Switzerland

Novartis

Jean-Pierre Malkowski

#4patientsBypatients

Basel, Switzerland

Novartis

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Marilena Florentina BANICA

Bucharest, Romania

Servier

Katie Hill

Associate Director, DIA Learning

Horsham, United States

DIA

CB

Christine BREUGNOT

In charge of Scientific Partnership

Suresnes, France

Dan Donovan

Founder & CEO at rareLife Solutions

South Norwalk, United States

rareLife solutions

AM

Andres Montoya

Andres Montoya

new york, United States

Janssen - Johnson & Johnson

JL

Joaquin Lizondo

Patient Advocacy Manager at Novartis

Barcelona, Spain

Novartis

Alissa Hanna

Senior Manager, Patient Engagement

Irvine, United States

Jincy Paulose

US Medical Director for Sickle Cell Disease and Iron Overload

East Hanover, United States

Novartis

SD

Stéphanie Durand

International Product Manager

SURESNES, France

Servier

Conditions

Explore the list of conditions in Synapse.
Chronic obstructive pulmonary disease (COPD)
Diabetes Type I
Duchenne muscular dystrophy
0 Organizations
0 Users
3 Initiatives
0 Resources
Irritable Bowel Syndrome (IBS)
0 Organizations
0 Users
2 Initiatives
0 Resources
Chronic kidney disease (CKD)
Premature labor
1 Organization 1 User
0 Initiatives
0 Resources
HIV/ AIDS
2 Organizations
0 Users
0 Initiatives
0 Resources
Hepatitis
0 Organizations
1 User
0 Initiatives
0 Resources
Epilepsy
0 Organizations
2 Users
0 Initiatives
0 Resources
Psoriatic Arthritis
2 Organizations
0 Users
0 Initiatives
0 Resources
Acromegaly
0 Organizations
1 User
0 Initiatives
0 Resources
Psoriasis
1 Organization 3 Users
0 Initiatives
0 Resources
Atopic Dermatitis
0 Organizations
1 User
0 Initiatives
0 Resources
Inflammatory Bowel Disease (IBD)
0 Organizations
1 User 1 Initiative
0 Resources
Rhinitis
1 Organization 1 User
0 Initiatives
0 Resources
Hypoglycemia
1 Organization 1 User
0 Initiatives
0 Resources
ADHD
0 Organizations
1 User
0 Initiatives
0 Resources
Hyperlipidemia/ dyslipidemia
0 Organizations
2 Users
0 Initiatives
0 Resources
Menopause
0 Organizations
0 Users
1 Initiative
0 Resources
Tuberculosis
1 Organization
0 Users
0 Initiatives
0 Resources

Future events

Future events you might be interested in

09

Sep08:30 AM

09

Sep05:00 PM

Drive Patient Centricity & Engagement With Meaningful Patient Involvement

31

Mar08:00 AM

02

Apr02:00 PM

EYEFORPHARMA BARCELEONA 2020

27

Mar12:00 PM

27

Mar01:00 PM

CORONAVIRUS PREPAREDNESS FOR PEOPLE WITH CHRONIC DISEASES

26

Mar08:30 AM

26

Mar08:30 AM

DIA DIRECT: COVID-19: Experts from China Speak on Conducting Clinical Trials During the Pandemic

26

Mar01:00 PM

26

Mar01:30 PM

ISNTD Connect- COVID-19 and dengue fever:

27

Mar02:00 PM

27

Mar02:00 PM

Covid - 19 A systemic Crisis

23

Mar02:00 PM

23

Mar02:00 PM

NHC PFMPD Webinar Series: What is the Role of Patient-Reported Data in Outcome-Based Contracts?

20

Mar12:00 PM

20

Mar01:00 PM

Webinar on ICER's Value Assessment Framework:

14

Jun09:00 AM

18

Jun05:00 PM

DIA Global Annual Meeting 2020

16

Sep08:00 AM

17

Sep05:00 PM

Smart Data Driving Healthy Cities