People

Begoña Nafría Escalera

Patient Expert Reviewer en Research Involvement and Engagement Journal

Esplugues de Llobregat, Spain

Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation

Pledge icon

Natasha Ratcliffe

Research Involvement Manager

London, United Kingdom

Parkinsons UK

Pledge icon

Katherine Capperella

Global Patient Engagement Leader

United States

Janssen - Johnson & Johnson

Pledge icon

Sarah Krug

Executive Director

New York, United States

CANCER101 / Society for Participatory Medicine

Pledge icon
CS

Ciarán Scott

Professor Karen Woolley

Global Lead, Patient Partnerships, Envision Pharma Group

Envision Pharma Group

Pledge icon
LP

Laurie Proulx

2nd Vice-President

Ottawa, Canada

Canadian Arthritis Patient Alliance

Laura Evans

Sheffield, United Kingdom

NIHR Sheffield Biomedical Research Centre (BRC)

Organizations

Initiatives

A sickle cell community built by the community for the community

Patient involvement in preparing clinical research peer-reviewed publications or results summaries: A systematic review

Pregnancy and Parenting with Arthritis

LP

Consulting a patient and carer group on the design and delivery of a proof of concept drug repurposing trial in Parkinson’s Disease

Understanding patient and stakeholder needs alongside the patient journey - A case from a Pharma Company

  Patients and community feedback on PLSs (Plain Language Summaries)

  Kids Barcelona - Young Person’s Advisory Group

  Supporting patient involvement in the development of new treatments Parkinson’s UK

  Building patient centricity into process: clinical development - HILFE FÜR MICH (Patient Navigator)

  Driving Innovation and Change via PE Dashboard

  Patient/Caregiver Pathway Mapping & Patient Shark Tank® Health Collaboratory

  Develop AKUre - Patient-led clinical trial

CS

Resources

CS

Develop AKUre - Patient-led clinical trial

04 Nov 2019 Book