Member of PARADIGM. PARADIGM's mission is to provide a unique framework that enables structured, effective, meaningful, ethical, innovative, and sustainable patient engagement (PE) and demonstrates the ‘return on the engagement’ for all players. The objective is to develop much-needed processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue. Discover the people, organizations, and resources from Synapse related to PARADIGM.
People
David Palacios
Head Global Patient Advocacy Pharma at Novartis based in Basel
Basel, Switzerland
Sandra Blum
Global Head Patient Advocacy - CardioMetabolic Franchise / Fostering patient engagement and advocacy
Switzerland
Mathieu Boudes
PARADIGM coordinator (http://imi-paradigm.eu/)
Paris, France
Paul Robinson
Assoc. Director, Scientific Medical & Patient Perspective
Philadelphia, United States
Tjerk Jan Schuitmaker
Assistant Professor System Innovations in Health Care
Amsterdam, Netherlands
Anne Beal
Member Board Of Directors at GSK
Washington DC, United States
Sharareh Hosseinzadeh
Global Head Clinical Patient Engagement -Chief Medical Office at Novartis
Dorval, Canada
Nicola Bedlington
Secretary General at European Patients' Forum
Brussels, Belgium
Begoña Nafría Escalera
Patient Expert Reviewer en Research Involvement and Engagement Journal
Esplugues de Llobregat, Spain
Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation / From Testing to Targeted Treatments (FT3)
Harriet Adams
Public Affairs Manager at The Association of the British Pharmaceutical Industry (ABPI)
Sheuli Porkess
Interim Director Research, Medical & Innovation at ABPI; Director Actaros Medical Affairs Consultancy
Chi Pakarinen
Belgium
Organizations
Institut de recherches internationales Servier
Resources
Patient Engagement in Early Dialogues: Tools and resources for HTA bodies
22 Oct 2020 Framework/guidance
Guidance for Reporting and Dissemination of Patient Engagement Activities
22 Oct 2020 Framework/guidance
Patient engagement in medicines development: Recommendations on how to find the right match for the right patient engagement activity
22 Oct 2020 Framework/guidance
Code of Conduct for all stakeholders involved in patient engagement activities within medicines development
22 Oct 2020 Framework/guidance
Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies
10 Sep 2020 Framework/guidance
Raising awareness on managing competing interests in a multi-stakeholder environment: Guidance to patients and engaging stakeholders
10 Sep 2020 Framework/guidance
PEOF 2020 - Patient Engagement Monitoring and Evaluation Framework with metrics
15 Sep 2020 Framework/guidance
Digital Health from a Patient Perspective with recommendations on digital health
18 Oct 2019 Publication