People
Jean-Philippe Plançon
European Patient Organisation for Dysimmune and inflammatory Neuropathies
La Baule, France
European Patient Organisation for Dysimmune and Inflammatory Neuropathies

Elisabeth Oehrlein
Senior Director, Research and Programs at National Health Council
Baltimore, United States
University of Maryland, Baltimore, Dept. Pharmaceutical Health Services Research

Laure Delbecque
Research Scientist - Patient Focused Outcomes Center of Expertise
Belgium

Dominique Hamerlijnck
Patient advocate/experience expert
Amsterdam, Netherlands
Mary Lynne Van Poelgeest-Pomfret
Mary Lynne van Poelgeest
Oegstgeest, Netherlands
Marta Garcia
Clinical Operations Patient Centric Responsable. Servier International
Stoke Poges, United Kingdom

Sheila Khawaja
✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow
San Canzian dIsonzo, Italy

Simon Stones
Doctoral Researcher in Child and Family Health
Leeds, United Kingdom

Begoña Nafría Escalera
Patient Expert Reviewer en Research Involvement and Engagement Journal
Esplugues de Llobregat, Spain
Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation

Paula Wray
Senior Manager
Oxford, United Kingdom
NIHR INVOLVE / University of Oxford / The National Institute for Health Research (NIHR)

Avishek Pal
Scientific communications strategist passionate about patient engagement
Basel, Switzerland

Jennifer Preston
Senior Patient and Public Involvement Manager
Liverpool, United Kingdom
University of Liverpool, Institute of Translational Medicine

Benjamin Missbach
Project Manager — Open Innovation in Science
Wien, Austria
Organizations

European Patient Organisation for Dysimmune and Inflammatory Neuropathies
Initiatives
How-To Guide On Patient Engagement in the Development of a Clinical Outcome Assessments (COA) Strategy
Global