Active and proud PFMD Working Groups Contributor - a network of around 103 committed and active participants representing various stakeholder groups (i.e. industry, patient associations, researchers, academics, and independent experts) actively working on developing How-To Guides for Patient Engagement.
People
Lauri Arnstein
Virginie Delwart
Advocacy and Strategic Alliances Director
Olga Zvonareva
Jean-Philippe Plançon
European Patient Organisation for Dysimmune and inflammatory Neuropathies
La Baule, France
European Patient Organisation for Dysimmune and Inflammatory Neuropathies
Chi Pakarinen
Belgium
Nick Hicks
Meghna Joshi-von Heyden
Orin Tempkin
Benjamin Keserue
Maarten Kraaijenhagen
Wafae Iraqi
Elisabeth Oehrlein
Senior Director, Research and Programs at National Health Council
Baltimore, United States
University of Maryland, Baltimore, Dept. Pharmaceutical Health Services Research
Laure Delbecque
Research Scientist - Patient Focused Outcomes Center of Expertise
Belgium
Paola Kruger
Dominique Hamerlijnck
Patient advocate/experience expert
Amsterdam, Netherlands
Duane Sunwold
Mary Lynne Van Poelgeest-Pomfret
Mary Lynne van Poelgeest
Oegstgeest, Netherlands
Benedikt Van Nieuwenhove
Passionate about patient centric drug development
Brussel, Belgium
Jane Thompson
saskya angevare
Netherlands
Anne-Lise Ducournau Lichtenberg
Eupati CH Member
Bottmingen, Switzerland
Janet Peterson
Markéta SAINT AROMAN
Dr Markéta SAINT AROMAN, MD
Lavaur, France
Erem Latif
Director, Patient Engagement
Chantilly, United States
Ronella Grootens
Marta Garcia
Clinical Operations Patient Centric Responsable. Servier International
Stoke Poges, United Kingdom
Stuart Miller
Director of Strategic Planning & Government Affairs IGAN Foundation
Rob Camp
Bruce Tippets
Ellen Baum
Cynthia Arnold
Janssen - Johnson and Johnson
Horsham, United States
Anthony Chuter
Sheila Khawaja
Patient engagment advisor | co-creator | catalyser
San Canzian dIsonzo, Italy
Simon Stones
Doctoral Researcher in Child and Family Health
Leeds, United Kingdom
Begoña Nafría Escalera
Patient Expert Reviewer en Research Involvement and Engagement Journal
Esplugues de Llobregat, Spain
Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation / From Testing to Targeted Treatments (FT3)
Paula Wray
Senior Manager
Oxford, United Kingdom
University of Oxford / NIHR Applied Research Collaboration Oxford and Thames Valley
Dawn Lobban
Avishek Pal
Scientific communications strategist passionate about patient engagement
Basel, Switzerland
Joanne Walker
Head of Publishing Solutions
London, United Kingdom
Thomas Schindler
Thomas M Schindler
Biberach, Germany
Elena Conroy
Senior Managing Editor, SAGE Publishing
London, United Kingdom
Laura Dormer
Editorial Director, Future Science Group
London, United Kingdom
Laurence Rouxhet
David Feldman
Medical Project Director at National Kidney Foundation
Wendy Costello Costello
Jennifer Preston
Senior Patient and Public Involvement Manager
Liverpool, United Kingdom
University of Liverpool, Institute of Translational Medicine
Merlin Williams
Merlin Williams
Manoj Lalu
Benjamin Missbach
Project Manager — Open Innovation in Science
Wien, Austria
Grace Fox
Organizations
European Patient Organisation for Dysimmune and Inflammatory Neuropathies
Generation R
Maastricht University
Initiatives
How-To Guide On Patient Engagement in the Development of a Clinical Outcome Assessments (COA) Strategy
