Active and proud PFMD Working Groups Contributor-a network of around 103 committed and active participants representing various stakeholder groups : Industry, Patient Associations, Researchers, Academics, Independent Experts.

People

JH

Jim Hartke

Anne-Marie Hamoir

Head of Membership and Project Management

La Hulpe, Belgium

The Synergist / PFMD

Chi Pakarinen

Project Manager

Brussels, Belgium

The Synergist / PFMD

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Nick Hicks

MJ

Meghna Joshi-von Heyden

Adit Bassi

Youth ambassador for patient and public involvement

United Kingdom

Generation R

Orin Tempkin

BK

Benjamin Keserue

MK

Maarten Kraaijenhagen

WI

Wafae Iraqi

Elisabeth Oehrlein

Senior Director, Research and Programs at National Health Council

Baltimore, United States

University of Maryland, Baltimore, Dept. Pharmaceutical Health Services Research

Laure Delbecque

Research Scientist - Patient Focused Outcomes Center of Expertise

Belgium

Pharmerit International / Lilly

Meike Wenzel

Partner

Baar, Switzerland

Executive Insight

Ashley Duenas

Evidera

PK

Paola Kruger

Dominique Hamerlijnck

Patient advocate/experience expert

Amsterdam, Netherlands

Dutch Lung Foundation LED-group

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Eupati

Duane Sunwold

ML

Mary Lynne Van Poelgeest-Pomfret

Mary Lynne van Poelgeest

Oegstgeest, Netherlands

World Federation for Incontinence and Pelvic Pain - WFIP

BV

Benedikt Van Nieuwenhove

JT

Jane Thompson

Estelle Jobson

Endometriosis advocate and Eupati fellow, Switzerland

Switzerland

EUPATI

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SA

saskya angevare

Netherlands

AD

Anne-Lise Ducournau Lichtenberg

Eupati CH Member

bottmingen, Switzerland

EI

Elitsa Ivanova

Center of Excellence Global Market Access

Suresnes, France

Servier

Mitchell Silva

Patient Engagement Expert

Brussels, Belgium

Esperity / EUPATI Belgium

JR

Jeanette Ryan

Protocol Review Forum Patient Engagement Lead

GlaxoSmithKline

JP

Janet Peterson

Markéta SAINT AROMAN

Olga Zvonareva

Erem Latif

Director, Patient Engagement

Chantilly, United States

RG

Ronella Grootens

MG

Marta Garcia

Clinical Operations Patient Centric Responsable. Servier International

Stoke Poges, United Kingdom

Servier

SW

Severine Wollenschneider

+41616875257

Basel, Switzerland

F. Hoffmann La Roche

Stuart Miller

Rob Camp

BT

Bruce Tippets

Andrew Elias

Lansdale, United States

Janssen - Johnson & Johnson

Kenza Seddik

Patient Experience & Value Lead, Global, Patient Experience and Value Mission

UCB

LP

Laurie Proulx

2nd Vice-President

Ottawa, Canada

Canadian Arthritis Patient Alliance

Karlin Schroeder

Director, Community Engagement

Parkinson's Disease Foundation

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EB

Ellen Baum

CA

Cynthia Arnold

AC

Anthony Chuter

Jessica Scott

Vanessa Ferreira

Patient Advocacy Manager

Santhera Pharmaceuticals

Sheila Khawaja

✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow

San Canzian dIsonzo, Italy

The World Alliance of Pituitary Organizations (WAPO)

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Simon Stones

Doctoral Researcher in Child and Family Health

Leeds, United Kingdom

Fibromyalgia Action UK

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Begoña Nafría Escalera

Patient Expert Reviewer en Research Involvement and Engagement Journal

Esplugues de Llobregat, Spain

Sant Joan de Déu Children's Hospital / Sant Joan de Déu Research Foundation

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Paula Wray

Senior Manager

Oxford, United Kingdom

NIHR INVOLVE / The National Institute for Health Research (NIHR)

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DL

Dawn Lobban

AP

Avishek Pal

JW

Joanne Walker

TS

Thomas Schindler

EC

Elena Conroy

LD

Laura Dormer

LR

Laurence Rouxhet

LA

Lauri Arnstein

DF

David Feldman

Medical Project Director at National Kidney Foundation

Wendy Costello Costello

Kelli Collins

Kelli Collins, MSW

New York, United States

National Kidney Foundation

Katherine Deane

Senior Lecturer in Research at University of East Anglia

University of East Anglia

Natasha Ratcliffe

Research Involvement Manager

London, United Kingdom

Parkinsons UK

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Jennifer Preston

Senior Patient and Public Involvement Manager

Liverpool, United Kingdom

University of Liverpool, Institute of Translational Medicine

Oleksander Gorbenko

Global Patient Affairs Medical Lead

United Kingdom

Ipsen pharma

Ursula Davis

Ursula Davis- passionate about making a difference

Overijse, Belgium

EL8 Consulting

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OB

Oana Bernard-Poenaru

Oana BERNARD

Suresnes, France

Servier

MW

Merlin Williams

Manoj Lalu

Claire Nolan

Research Involvement Manager

United Kingdom

Parkinsons UK

Benjamin Missbach

Project Manager — Open Innovation in Science

Ludwig Boltzmann Society

Grace Fox

Carole Scrafton

Carole Scrafton

Sunderland, United Kingdom

FibroFlutters

Organizations

European AIDS Treatment Group (EATG)

European infrastructure for translational medicine (EATRIS)

Non-profit

NICE (National Institute of Clinical Excellence)

Regulatory Body

UO

University of Liverpool, Institute of Translational Medicine

Research Institution