Patient Engagement Synapse - Country - United Kingdom

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People

Fiona Reekie

Head EMEA Region and Reg Policy & Intell

Slough, United Kingdom

Flora Raffai

Executive Director

Cambridge, United Kingdom

Paula Wray

Senior Manager

Oxford, United Kingdom

NIHR INVOLVE / University of Oxford / The National Institute for Health Research (NIHR)

Claire Nolan

Research Involvement Manager

United Kingdom

Jeremy Taylor

Chief Executive

London, United Kingdom

National Voices

Kim Rezel

Patient and Public Involvement Lead

London, United Kingdom

Healthcare Quality Improvement Partnership (HQIP)

Elin Haf Davies

CEO

London, United Kingdom

Paul Humphrey

Associate Director Patient Advocacy - BioMarin

London, United Kingdom

Ify Sargeant

Scientific editor

United Kingdom

The Synergist / PFMD / IsMedica

Oleksander Gorbenko

Global Patient Affairs Medical Lead

United Kingdom

Lee Willmott

Cambridge, United Kingdom

Rosamund Snow

London, United Kingdom

BMJ (British Medical Journal)

Stephen O'Farrell

Patient Involvement Lead

London, United Kingdom

Peter Bates

Director

Nottingham, United Kingdom

Peter Bates Associates

Rosie Davies

Research Fellow (Patient and Public Involvement)

United Kingdom

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Organizations

University of Oxford

Fibromyalgia Action UK

Patient Advocacy Organization

University of East Anglia

Swansea University

Academic Medical Center/Hospital/Practice

NIHR INVOLVE

Research Infrastructure

Parkinsons UK

Patient Advocacy Organization

Diabetes UK

Patient Advocacy Organization

Association of British Pharmaceutical Industries

Pharmaceutical Company

Merseyside Diabetes Action Group

Patient Advocacy Organization

Metabolic Support UK

Patient Advocacy Organization

University of Exeter

Association of Medical Research Charities

Research Funder

University of Warwick

MARGO YOUNG FOUNDATION

Patient Advocacy Organization

THEODORA CHILDRENS CHARITY

Patient Advocacy Organization

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Initiatives

My Cancer, My DNA

UK Genetics Alliance

Patient Group Consultative Forum (PGCF)

MHRA (Medicines and Healthcare Products Regulatory Agency)

Reclassification Platform

MHRA (Medicines and Healthcare Products Regulatory Agency)

Peer Mentoring

Online Portal

UK MS Register

Swansea University

Patient and Public Involvement Programme (PPIP)

Working together, delivering for patients

National Voices

Six principles for engaging people and communities: definitions, evaluation and measurement / and ‘Putting them into practice’

National Voices

Patient and public involvement strategy

Healthcare Quality Improvement Partnership (HQIP)

Priority Setting Partnership

mHealth to capture meaningful patient outcomes in rare diseases

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Events

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