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United States

North America
  • Overview
  • People 148
  • Organizations 99
  • Initiatives 32
  • Events 9
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People

Stephen Yates

Clinical Program Director

Raleigh, United States

UCB

Janet Vessotskie

Head of Americas, Regulatory Policy & Intell

Smyrna, United States

UCB

MG

Meghan Gwara

Coordinator

Hartford, United States

AH

Annemarie Harlow

Pharmacovigilance System Center of Excellence

Raleigh, United States

UCB

ML

Michael Leighton

Managing Director

collingswood, United States

Biocentric

JS

Jean Slutsky

Chief Engagement and Dissemination Officer

Washington DC, United States

Patient-Centered Outcomes Research Institute (PCORI)

ET

Ellen Tambor

Research Director

Baltimore, United States

Center for Medical Technology Policy (CMTP)

KY

Kimberly Yang

Founder

Ellicott City, United States

HealthInfoPro

FS

Fatima Scipione

Senior Director, PatientAdvocacy

Cambridge, United States

Takeda Pharmaceuticals

MO

Marilynn Oliphant

Patient Engagement Operations Lead

Cambridge, United States

Takeda Pharmaceuticals

LN

Linda Nielsen

Sr Director, VEO-Patient Centered Outcomes

Collegeville, United States

GlaxoSmithKline

Linda Bornyasz

Director, Strategy Deployment

Cherry Hill, United States

GlaxoSmithKline

Katie Mazuk

Senior Director, Investigator & Patient Engagement

Titusville, United States

Janssen - Johnson & Johnson

Pledge icon

Alec Pettifer

Patient Centric Insights for Pharmaceutical and Life Sciences

United States

SuAzio Consulting

Pledge icon
NH

Nadege Houri

Director, Strategy and Business Transformation

New York, United States

Janssen - Johnson & Johnson

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Organizations

PP

Patient Powered Research ! Design ! Engagement

Start Up

United States
0 Users
0 Initiatives
0 Resources

Asthma and Allergy Foundation of America, New England Chapter

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Asthma Athletics

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Gorling Syndrome Alliance- Basal Cell Carcinoma Nevus Syndrome Life Support Network

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Be The Match Foundation

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Bebashi: Transition to Hope

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

BFRIN

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Bike the US for MS

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Bladder Cancer Advocacy Network

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Breast Cancer Connections

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Institute for Clinical and Economic Review (ICER)

United States
0 Users
0 Initiatives
0 Resources

Lung Cancer Initiative

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

SPINAL MUSCULAR ATROPHY

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

Accelerate Brain Cancer Cure, Inc.

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources

AIM at Melanoma

Patient Advocacy Organization

United States
0 Users
0 Initiatives
0 Resources
see all

Initiatives

Expanding the Science of Patient Input: Pain Points and Potential

FasterCures

United States

Patient-Focused Drug Development Meeting Resources

FasterCures
JR

United States

Completed over one year ago

The National Kidney Foundation Board of Directors includes patients and family members of patients as active members.

National Kidney Foundation

United States

The Kidney Advocacy Committee (KAC)

National Kidney Foundation

United States

NKF's CKD Patient Registry

National Kidney Foundation

United States

M-CERSI Conference on Patient-Focused Drug Development

University of Maryland, Baltimore, Dept. Pharmaceutical Health Se...

United States

Science of Patient Input Resources

FasterCures

United States

Protocol review

Pfizer

United States

Education to Engage Patients: Health Data ("Health Data Basics")

FasterCures

United States

Diabetes Prevention

Diabetes Education & Self Management Alliance
BG

United States

A sickle cell community built by the community for the community

rareLife solutions

United States

Currently underway

  Clinical Outcome Assessment

National Health Council
EO

United States

see all

Events

29

Sep10:00 AM

30

Sep04:00 PM

Virtual Science of Patient Engagement Symposium 2020

United States

21

Sep07:00 AM

24

Sep04:30 PM

RAPS Regulatory Convergence

United States

23

Jun08:00 AM

27

Jun12:00 PM

DIA 2019 Global Annual Meeting

JB
+ 2
California, United States

20

Apr09:00 AM

22

Apr05:00 PM

16th Annual Meeting of ISMPP

United States

23

Aug10:00 AM

27

Aug01:30 PM

ISEE Anual Conference

Washington,, United States

07

May02:00 PM

07

May02:00 PM

PATIENT ENGAGEMENT BEST PRACTICES: THE BENEFITS WITHOUT THE RISKS

United States

12

May10:00 AM

12

May10:00 AM

Developing and Implementing a Patient Engagement Strategy

United States

02

Mar08:00 AM

03

Mar05:00 PM

Enrollment Planning and Patient Recruitment

United States

24

Sep03:00 PM

24

Sep04:00 PM

NHC PFMPD Webinar Series: Health literacy throughout drug development:why it matters to pharma and to patients

United States

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