Patient Engagement Synapse - Country - United States

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People

Stephen Yates

Clinical Program Director

Raleigh, United States

Janet Vessotskie

Head of Americas, Regulatory Policy & Intell

Smyrna, United States

Meghan Gwara

Coordinator

Hartford, United States

Annemarie Harlow

Pharmacovigilance System Center of Excellence

Raleigh, United States

Michael Leighton

Managing Director

collingswood, United States

Jean Slutsky

Chief Engagement and Dissemination Officer

Washington DC, United States

Patient-Centered Outcomes Research Institute (PCORI)

Ellen Tambor

Research Director

Baltimore, United States

Center for Medical Technology Policy (CMTP)

Kimberly Yang

Founder

Ellicott City, United States

Fatima Scipione

Senior Director, PatientAdvocacy

Cambridge, United States

Takeda Pharmaceuticals

Marilynn Oliphant

Patient Engagement Operations Lead

Cambridge, United States

Takeda Pharmaceuticals

Linda Nielsen

Sr Director, VEO-Patient Centered Outcomes

Collegeville, United States

GlaxoSmithKline

Linda Bornyasz

Director, Strategy Deployment

Cherry Hill, United States

GlaxoSmithKline

Katie Mazuk

Senior Director, Investigator & Patient Engagement

Titusville, United States

Janssen - Johnson & Johnson

Alec Pettifer

Patient Centric Insights for Pharmaceutical and Life Sciences

United States

SuAzio Consulting

Nadege Houri

Director, Strategy and Business Transformation

New York, United States

Janssen - Johnson & Johnson

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Organizations

Patient Powered Research ! Design ! Engagement

Asthma and Allergy Foundation of America, New England Chapter

Patient Advocacy Organization

Asthma Athletics

Patient Advocacy Organization

Gorling Syndrome Alliance- Basal Cell Carcinoma Nevus Syndrome Life Support Network

Patient Advocacy Organization

Be The Match Foundation

Patient Advocacy Organization

Bebashi: Transition to Hope

Patient Advocacy Organization

BFRIN

Patient Advocacy Organization

Bike the US for MS

Patient Advocacy Organization

Bladder Cancer Advocacy Network

Patient Advocacy Organization

Breast Cancer Connections

Patient Advocacy Organization

Institute for Clinical and Economic Review (ICER)

Lung Cancer Initiative

Patient Advocacy Organization

SPINAL MUSCULAR ATROPHY

Patient Advocacy Organization

Accelerate Brain Cancer Cure, Inc.

Patient Advocacy Organization

AIM at Melanoma

Patient Advocacy Organization

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Initiatives

Expanding the Science of Patient Input: Pain Points and Potential

Patient-Focused Drug Development Meeting Resources

The National Kidney Foundation Board of Directors includes patients and family members of patients as active members.

National Kidney Foundation

The Kidney Advocacy Committee (KAC)

National Kidney Foundation

NKF's CKD Patient Registry

National Kidney Foundation

M-CERSI Conference on Patient-Focused Drug Development

University of Maryland, Baltimore, Dept. Pharmaceutical Health Se...

Science of Patient Input Resources

Protocol review

Education to Engage Patients: Health Data ("Health Data Basics")

Diabetes Prevention

Diabetes Education & Self Management Alliance

A sickle cell community built by the community for the community

rareLife solutions

Clinical Outcome Assessment

National Health Council

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Events

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