20-year track record in policy, advocacy, and campaigns, with strong fundraising experience. Highly skilled in building and inspiring teams, creating meaningful partnerships with stakeholders, and representing organisations at the highest levels to advance equity and inclusion in the fields of health, disability, development and ageing.
• Extensive fundraising experience both public and private
• Leadership in private, NGO, public and institutional settings, in governance, and in creating and managing Boards
• Proven success in innovative and workable policy development at European and international level
• Extensive experience in organisational development, strategic planning, human resources, risk and performance management, and evaluation
• Experienced public speaker and chair
• Budget management and financial planning
The European Patients’ Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Our members represent specific chronic disease groups at EU level or are national coalitions of patients.
The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.
The European Patients’ Academy (EUPATI) is a pan-European project implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations. EUPATI was started, developed and implemented as a flagship project of the Innovative Medicines Initiative (http://www.imi.europa.eu/), and continues to be led by the European Patients’ Forum. EUPATI has already trained over 150 patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI provides an online Toolbox on Medicine Development which has been used by more than 3.4 million individuals, and coordinates a network of national platforms in 21 countries. EUPATI focuses on education and training to increase the capacity and capability of patients to understand and contribute to medicines research and development and also improve the availability of objective, reliable, patient-friendly information for the public.Patient involvement in R&D, strengthened by EUPATI's training and communication activities and informational resources, will make sure that patients priorities and needs are at the center in all research and development work on safe and effective new treatments, ultimately improving patient outcomes.
PE Open Forum
EYEFORPHARMA BARCELEONA 2020
Clinical Trials at the time of COVID-19 - and beyond
Multinational coalition focus on co-creation of meta-framework to benefit patients globally - Video
12 Jan 2018
Podcast: How to Make Patient Involvement Sustainable Throughout Medicines Development
13 Jan 2019