To empower, inform and engage patients and their caregivers to take control over their diagnoses, navigate the cancer journey, and partner with their healthcare team to make informed decisionsTo
To catalyze collaborative partnerships across the continuum of care to optimize health and health care.The Society for Participatory Medicine is a 501(c)(3) not-for-profit organization devoted to promoting the concept of participatory medicine, a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. Our Guiding Principles: To guide patients and caregivers to be actively engaged in their health and health care experiences. To guide health professional practices where patient experience and contribution is an integral goal of excellence. To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care. The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education. This partnership of cooperation is enhanced with the Society’s Four Pillars: 1) Research Provide a participatory medicine forum for collaborative research exchange and evidence based practice project collaboration. 2) Education & Resources Provide resources, reference tools and best practice standards that support participatory medicine. 3) Advocacy & Policy Ongoing work with government officials, policy-making bodies, patient advocacy organizations to foster the ideals of participatory medicine. 4) Community Encourage collaboration and networking among members and organizations who are ambassadors for the participatory medicine movement.
Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article
12 Jan 2018
Multinational coalition focus on co-creation of meta-framework to benefit patients globally - Video
12 Jan 2018
I commit to co-designing solutions with patients and their caregivers by first working with them to identify and prioritize the issues. I also commit to empowering patients and caregivers to participate in co-design projects by providing them with coaching, tools and resources.Work in progress
I commit to communicating with patients and their caregivers in a manner that translates high science into layman's terms and incorporate methodology such as "teach back" to ensure that information conveyed is understood.Work in progress