My vision is to improve the quality of life of patients with complex and serious conditions through a holistic view dedicating 9 years to train and to collaborate with different organizations in the field of biological research. Eight years of experience identifying, coordinating and seeking ways to collaborate with key opinion leaders (KOLs) in the field of rare diseases. Seven years guiding and assisting the development of non - profit associations and related organizations for chronic diseases. Four and a half years of experience in the pharmaceutical sector and business skills acquired through an MBA. MBA Thesis title: "Embracing orphan diseases: a bright pharmaceutical strategy". Currently studying the Master in scientific, environmental and medical communication by distance learning. One year and ten months experience as a Medical Science Liaison in the field of derma-oncology. 4 languages (Portuguese and Spanish Native or bilingual proficiency. Full professional proficiency for English and French).
To develop treatments for neuromuscular and neuro-ophthalmological diseases that currently lack treatment options, such as Leber's hereditary optic neuropathy (LHON), Duchenne muscular dystrophy (DMD), congenital muscular dystrophy (CMD) and primary progressive multiple sclerosis (PPMS).We are passionate about improving patients’ quality of life and are well on the way to becoming leaders in rare mitochondrial and neuromuscular disorders.