The European Patients’ Academy (EUPATI) is a pan-European project implemented as a public-private pa...
Joan Jordan- the MS Ireland Person of the Year 2016 has made a lot of life changes since she was diagnosed with Multiple Sclerosis in 2010. A Computer Science graduate, she had previously worked across the globe for over a decade on IT projects. She has graduated from the EUPATI training course along with many other patient advocates from across Europe (www.eupati.eu) and now works as their Content Coordinator. Her special interests are in statistics, pharmacoeconomics and pharmacovigilance. Since her diagnosis, Joan has taken up many new challenges- including blogging. She is a regular contributor to the award winning MS Ireland blog team (www.ms-society.ie/pages/community/ms-and-me). She has also spoken at many events and has published HuManS- the book she wishes she had been given when she got diagnosed (www.facebook.com/HumansMultipleSclerosis). Joan wants to help make life better for the 9,000 Irish people living with MS and wants to use her experience in I.T, her participation in a clinical trial, her communication skills, her time living abroad and most importantly- knowing what it is like to live with an illness for which there is currently no cure to help find one. She believes that the patient has an important role to play in this challenge. Nothing about us without us!
We learn so much from each other. Stronger together!Work in progress
Reduce, reuse, recycle.Work in progress
Help build a skills database - stating who can do what, how everyone can help.Work in progress