The mission of the National Health Council is to provide a united voice for people with chronic diseases and disabilities and their family caregivers. Learn more at: http://www.nationalhealthcouncil.org/about-nhcWe envision a society in which all people have access to quality health care that respects personal goals and aspirations, and is designed around the patient experience to promote their best possible health outcomes. Learn more at: http://www.nationalhealthcouncil.org/about-nhc
The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.
27 Sep 2019 Framework/guidance
Methods Principles for Using Patient-Provided Information to Improve Real-World Evidence for Patient-Centered Value Assessment
27 Sep 2019 Other
30 Sep 2019 Other
Patient-community Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust
30 Sep 2019 Framework/guidance