260 public initiatives (out of 498 initiatives in total)

"Inspiring Hope" Ideathon


"Tell us!" — about accidental injuries.

(TAIN) Treatment of Adrenal Insufficiency in Neonates

  150+ PE activities to inform PE Quality Guidance's how to modules

1st European Patient Groups Advisory Board meeting for Leber’s Hereditary Optic Neuropathy (LHON)

A sickle cell community built by the community for the community

ACRES Patient Engagement Initiative (PEI)



AIDA Project