HILFE FÜR MICH (Patient Navigator) is an online tool, created for patients as well as their relatives to inform, educate and explore people’s needs. The Digital Patient Navigator, first in navigating patients and caregivers through the complex HC system for diseases, initially metastatic breast cancer, stroke and kidney cancer, is patient-led and developed in concept, content and design, leveraging synergies across therapeutic areas in co-creation with external partners.
In a pilot project, a digital service platform that offers quality-reviewed information and patient pathways for people living with illness and their families was developed. With a clear structure with questions, answers, and links, those affected should quickly find the information they need.
What’s unique about this: Through the development of personal “patient pathways” patients also get individual help in dealing with their disease. The patient pathway helps them outline and understand their options and what they can do to stabilize or improve their health. Thus the platform may help the people affected, as well as their families and other members of their support communities, to cope better with their new situation and their own emotions, to deal with the plethora of information, and to make necessary decisions with a sense of confidence and empowerment.
The central impulse for the creation of this internet portal was the idea of a board of patient experts to develop a new information offering for patients with severe chronic disease, which would offer them support and comfort on their path and would help them deal with their new situation, their emotions, and the plethora of information, as well as empower them to make important decisions and to cope better with the disease in their lives.
Patient Navigator is based on patient, physician and the Pfizer expertise:
The experts are represented for metastatic breast cancer (14 experts), stroke (8 experts) and kidney cancer (6 experts) according to their professional background. In these categories, Pfizer colleagues are involved and participate at eye level with the external specialists that support the project. Pfizer‘s experts on www.hilfefuermich.de are Peter Albiez, CEO Pfizer Germany, and Christina Claussen, Director Alliance Management & Patient Relations Pfizer Germany.
Users find information through more than 250 questions and answers that include links to medical associations, treatment guidelines or journals to make external knowledge available for the users. HILFE FÜR MICH provides links and short descriptions of more than 50 patient organizations and other platforms that offer information and help.
All content goes through a multi-level review process before publication. Checks are performed on the factual correctness of the information, the relevance and currency of the content, and whether the selection and presentation of the topics is suitable for the patient audience. Experts who provide different specialist competencies, such as in the medical, legal, and editorial fields, are involved in the different review processes. Patients also ensure that the patient orientation of the topics and content is guaranteed. Medical specialists check the accuracy of the health topics, while communication experts ensure that the text is easy to read and flows well.
The protection of personal privacy and private data is important to us. We capture, process, and use personal data in compliance with the German data protection laws and its data protection declaration.
Quality of patient engagement
Feedback from patients at regularly scheduled discussions verified that these actions were meeting their expectations of engagement.