This programme was created to offer hands on support and advice for people affected by Parkinson's and researchers to work together to prioritise, design, manage and disseminate Parkinson's research. The programme provides face-to-face training and resources for both people affected by Parkinson's and researchers to help prepare them to work together. Through the programme Parkinson's UK have provided funding and facilitation for the initial face to face meeting as well as providing on going support for further collaboration between patients and researchers.
Both the training for people affected by Parkinson's and the training for researchers focus on the importance of the role of patients in shaping research as well as practical examples of how to work together. The training for people affected by Parkinson's also includes information about the research process, the pipeline to new treatments and ethical issues in research.
The goal is to ensure that people affected by Parkinson's are working in partnership with researchers in a meaningful way to make research more relevant, more likely to succeed and ensure that the benefits of the research are felt by the people who need it most, faster.
Problems addressed by Initiative
It is now widely acknowledged that health research that is done in partnership with patients is more relevant and higher quality. However, researchers feel they need more support to work with patients in this way and patients can sometimes lack the confidence to know that their knowledge and experience is key to successful research. Parkinson's UK's PPIP helps overcome these barriers and ensure that both patients and researchers get the most out of their collaboration.
Providing guidance to others in their efforts