77 public initiatives (out of 133 initiatives in total)

(TAIN) Treatment of Adrenal Insufficiency in Neonates

1st European Patient Groups Advisory Board meeting for Leber’s Hereditary Optic Neuropathy (LHON)


AIDA Project

Consumers In Research


  Develop AKUre - Patient-led clinical trial


Direct patient insight on Lupus with a focus on cutaneous aspects

EMPATHIE – Tender of Patient Empowerment for Patients with Chronic Conditions

  ERN on adult cancers (solid tumours) (ERN EURACAN)