About the organization
Basic details : We're a patient organization, for patients. We can share our information, advocacy, education and research support goals together. We can also try to support each other by sharing our common experiences. We benefit from the support of all hemophilia and VWD professionals in Belgium (doctors, nurses, etc.).
We have the same requirements for medical confidentiality as health care professionals. As patients ourselves, we value the discretion of our personal stories. The names and contact details of those who contact us are never passed on to anyone and all questions asked of us are treated with the utmost discretion.