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Canadian Arthritis Patient Alliance

Patient Advocacy Organization
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  • Info
  • People 1
  • Initiatives 4
  • Events 0
  • Resources 4

About the organization

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We provide a strong voice and concerted effort to promote the social, economic and environmental well being of people living with arthritis. We communicate with all levels of government to make positive changes to health policies. We maintain formal and informal networks, initiate or participate in committees and partnerships with other organizations to better enable us to negotiate on behalf of people living with arthritis - and we talk to our neighbors.The Canadian Arthritis Patient Alliance (CAPA) is a grass-root, patient-driven, independent, national advocacy organization with members across Canada and supporters both Canadian and International. CAPA believes the first expert on arthritis is the individual who has the disease, theirs is a unique perspective. We assist members to become advocates not only for themselves but all people with arthritis. CAPA facilitates links between Canadians with arthritis and their support systems through collaboration and partnerships with other organizations, representatives from all levels of government, researchers, and other individuals to help achieve CAPA's strategic priorities. The organization communicates the latest news on health policy issues, research, technology and emerging issues relevant to members through its website and Facebook pages.

Mission : We provide a strong voice and concerted effort to promote the social, economic and environmental well being of people living with arthritis. We communicate with all levels of government to make positive changes to health policies. We maintain formal and informal networks, initiate or participate in committees and partnerships with other organizations to better enable us to negotiate on behalf of people living with arthritis - and we talk to our neighbors.

Vision : The Canadian Arthritis Patient Alliance (CAPA) is a grass-root, patient-driven, independent, national advocacy organization with members across Canada and supporters both Canadian and International. CAPA believes the first expert on arthritis is the individual who has the disease, theirs is a unique perspective. We assist members to become advocates not only for themselves but all people with arthritis.

CAPA facilitates links between Canadians with arthritis and their support systems through collaboration and partnerships with other organizations, representatives from all levels of government, researchers, and other individuals to help achieve CAPA's strategic priorities. The organization communicates the latest news on health policy issues, research, technology and emerging issues relevant to members through its website and Facebook pages.

Badges earned

Website

http://www.arthritispatient.ca

Address

, Canada

Contact us for

General partnerships, Good practice sharing, Opportunities for patient engagement collaborations, Speaking opportunities

Organization main contact email

laurieproulx@bell.net

Conditions

Rheumatology/Juvenile Idiopathic Arthritis (JIA), Rheumatology/Juvenile Rheumatoid Arthritis (JRA), Musculoskeletal/Psoriatic Arthritis

People

LP

Laurie Proulx

2nd Vice-President

Ottawa, Canada

Canadian Arthritis Patient Alliance

Initiatives

Pregnancy and Parenting with Arthritis

Canadian Arthritis Patient Alliance
LP

Canada

  150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,
+ 7

Global

Currently underway

  Patient engagement in the regulatory submission phase

BioMarin, Janssen - Johnson & Johnson, PFMD ,
LP
+ 13

Global

Completed less than one year ago

  Patient engagement in co-creation of Patient Information Leaflets and other patient facing material.

PFMD, Takeda Pharmaceuticals, UCB, Canadian Arthritis Patient Alliance ,
WI
+ 20

Global

Completed less than one year ago

Resources

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