About the organization
Basic details : Dupuytren disease is the most common crippling hand condition that people have never heard of. Bent fingers are only part of the picture. Dupuytren disease is a systemic problem. It can affect the hands (Dupuytren contracture, Garrod knuckle pads) and the feet (Ledderhose Disease). Developing one of these increases risk of developing others. It is a serious health issue. People with Dupuytren contracture have a greater risk for cardiovascular disease, several types of cancer, and early death – for reasons unknown. There is no prevention and no cure. Why? The only available treatments are by surgeons, and most research has been on procedures, not the core biology. Current treatments are inadequate. Surgeons treat contractures, but improvement is often partial and temporary. Over time, repeat procedures become less effective and more dangerous. Long term problems with progression and re-contracture have not improved in the last fifty years. Understanding Dupuytren biology may lead to better treatment for other serious medical conditions. Dupuytren biology overlaps that of other fibrotic conditions, including cardiovascular disease, cirrhosis of the liver, pulmonary fibrosis, scleroderma, and others. It’s no coincidence that most of these conditions also lack effective medicines – they share parallel biologic pathways.
Mission : Our mission is to do whatever is needed to develop and test preventive treatments for Dupuytren disease and related conditions. Our core effort focuses on answering the greatest need in Dupuytren treatment: developing a Dupuytren blood test.
Vision : A future without Dupuytren disease.
Organization primary focus : Medical Research - To find a cause and cure for Dupuytren Disease
Structure : We are a nonprofit organization with a Board of Directors.
Affiliation : None
1850 Forest Hill Blvd. Suite 201, 33406 - West Palm Beach, US
Contact us for
Opportunities for patient engagement collaborations
Organization main contact email
561 429 8279
Dupuytren Research Group
West Palm Beach, United States
for internal use only