Basic details : The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.

EURORDIS undertakes activities on behalf of its members, notably in favour of:
✔Empowering rare disease patient groups
✔Advocating rare diseases as a public health issue
✔Raising public rare disease awareness, and also that of national and international institutions
✔Improving access to information, treatment, care, and support for people living with rare diseases
✔Encouraging good practices in relation to these
✔Promoting scientific and clinical rare disease research
✔Developing rare disease treatments and orphan drugs
✔Improving the quality of life through patient support, social, welfare, and educational services

Mission : EURORDIS' mission is to build a strong pan-European community of patient organizations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

Vision : Improve the quality of life of all people living with rare diseases in Europe