About the organization
Mission : Aiming to help improve the lives of patients by promoting multi-disciplinary approaches to all aspects within the medical healthcare industries, hoping to bring all stakeholders together to help work together on patient engagement initiatives that will improve patients outcomes... but also improve outcomes for all stakeholders involved.
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Aiming for multidisciplinary approaches to medical healthcare, or patient-centricity, patients-included, etc my reasons for this are to encourage people from different sectors to take a look at what is happening in other parts of the healthcare industries, spread the patient voice and advocate for changes where they are needed.
Vision : Better systems for patients with multiple conditions and a desire to have a multidisciplinary approach to our healthcare from all stakeholders involved. Multidisciplinary Medical Centres for people with multiple conditions so they can access better care and treatment plans, healthcare pathways.
Better access to research and trials through a one-fits-all data hub that is ruled through patient opt-in, spoiled by regulatory and policy issues of higher governmental levels. How to change those policies? who to access to get the opportunity to help create changes? All-in stakeholder approach may be the answer
'Multidisciplinary Medical Centre’, which would be utilised by all stakeholders so that patients had access to them all and our data is kept in one place and is accessible to all parties.
Organization primary focus : FIBROFLUTTERS
Structure : Non-profit support group / patient organisation
Affiliation : NON umbrella orgs
Fibromyalgia Action Uk
Ehler's Danlos Support UK