About the organization
Basic details : The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.To enhance the lives of everyone with, at risk of, or affected by kidney disease.
Mission : The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.
Vision : To enhance the lives of everyone with, at risk of, or affected by kidney disease.
Badges earned
People
Tonya Saffer
Senior Health Policy Director at the National Kidney Foundation
Washington, United States
Jennifer Russell
Jennifer St. Clair Russell, PhD, MSEd, MCHES
Washington, United States
Initiatives
FDA Workshop (Food and Drug Administration, USA)
CKDintercept
NKF's CKD Patient Registry
NKF Interviews Patients on their CKD Diagnosis
NKF interviews healthcare providers
PE Stakeholder Expectation Matrix
SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository
Co-creation of the Patient Engagement "Meta-Framework"
Patient Engagement How-To-Module for the Early Discovery and Preclinical phases
Patient engagement in the regulatory submission phase
Resources
DIA 2019 Panel Discussion - Patient Engagement Quality Guidance Results and Learnings from Global Multistakeholder Pilots
10 Jul 2019 Learning and training
Kidney Disease and Coronavirus
27 Mar 2020 Article and blog post