Parkinson's Disease Foundation

Patient Advocacy Organization

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About the organization

Basic details : To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.

Mission : To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.

Vision : A world without Parkinson's disease.

Website

http://www.pdf.org

Address

1359 Broadway, 10018 - new york, US

People

Veronica Todaro

Vice President, National Programs

new york, United States

Parkinson's Disease Foundation

Karlin Schroeder

Director, Community Engagement

Parkinson's Disease Foundation

see all

Initiatives

Parkinson's Advocates in Research

Parkinson's Disease Foundation

PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,

PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme, INVOLVE, DIA ,

Pledge to Patients

PFMD, The Synergist, National Health Council ,

SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme, EURORDIS - Rare Diseases Europe ,

Co-creation of the Patient Engagement "Meta-Framework"

PFMD, INVOLVE, DIA, Parkinson's Disease Foundation, Parkinsons UK ,

150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,

Co-creation Working Group 3: Regulatory phase

PFMD, Sant Joan de Déu Children's Hospital, Takeda Pharmaceuticals ,

Resources

The PAIR program

22 Aug 2018

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