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Parkinson's Disease Foundation

Patient Advocacy Organization
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  • Info
  • People 2
  • Initiatives 9
  • Events 0
  • Resources 2

About the organization

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To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.

Mission : To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.

Vision : A world without Parkinson's disease.

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Website

http://www.pdf.org

Address

1359 Broadway 10018 new york, United States

Conditions

Neurology/Parkinson's Disease

People

Veronica Todaro

Vice President, National Programs

new york, United States

Parkinson's Disease Foundation

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Karlin Schroeder

Director, Community Engagement

Parkinson's Disease Foundation

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Initiatives

Parkinson's Advocates in Research

Parkinson's Disease Foundation

North America

  PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,
+ 21

Global

  PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,
+ 4

Global

  Pledge to Patients

PFMD, The Synergist, National Health Council ,
+ 15

Global

Currently underway

  SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,
+ 23

Global

  Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,
+ 22

Global

Completed over one year ago

  The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,
+ 9

Global

Currently underway

  150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,
+ 7

Global

Currently underway

  Patient engagement in the regulatory submission phase

BioMarin, Janssen - Johnson & Johnson, PFMD ,
LP
+ 13

Global

Completed less than one year ago

Resources

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