Parkinson's Disease Foundation

Patient Advocacy Organization

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About the organization

To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.

Mission : To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.

Vision : A world without Parkinson's disease.

Website

http://www.pdf.org

Address

1359 Broadway 10018 new york, United States

Conditions

Neurology/Parkinson's Disease

People

Veronica Todaro

Vice President, National Programs

new york, United States

Parkinson's Disease Foundation

Karlin Schroeder

Director, Community Engagement

Parkinson's Disease Foundation

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Initiatives

Parkinson's Advocates in Research

Parkinson's Disease Foundation

PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,

PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,

Pledge to Patients

PFMD, The Synergist, National Health Council ,

SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,

Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,

The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,

150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,

Patient engagement in the regulatory submission phase

BioMarin, Janssen - Johnson & Johnson, PFMD ,

Resources

Get the latest information on Patient Focused Medicines Development and stay connected with our activities.