About the organization
Basic details : Parkinson's UK is here to make sure people have whatever they need to take back control – from information to inspiration.
We want everyone to get the best health and social care. So we bring professionals together to drive improvements that enable people to live life to the full.
Ultimately, we want to end Parkinson's. That's why we inspire and support the international research community to develop life-changing treatments, faster. And we won’t stop until we find a cure.
Together we can bring forward the day when no one fears Parkinson's.
Mission : ➤Research
We influence and found groundbreaking research to advance understanding of Parkinson's and improve treatments
➤Information and support
Having Parkinson's isn't easy, but we provide expert information and support to help manage the condition
➤Support
We offer support and opportunities to live life to the full for everyone with Parkinson's, their families, and carers.
➤Campaigning for change
We raise awareness, change perceptions and work in partnership to drive better services
Vision : Our vision - our ultimate ambition - is to find a cure, and improve life for everyone affected by Parkinson's.
The hopes and views of people affected by Parkinson's has helped us identify this clear vision for the future.
We believe a cure will be found by overcoming the symptoms one by one.
Badges earned
Website
Address
215 Vauxhall Bridge Road, SW1V 1EJ - London, GB
Conditions
People
Initiatives
PE Stakeholder Expectation Matrix
SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository
Co-creation of the Patient Engagement "Meta-Framework"
Patient Engagement How-To-Module for the Early Discovery and Preclinical phases
Resources
Patient and public involvement: Guidance for researchers
20 Dec 2018
Working with patients and patient organisations - a sourcebook for industry
28 Jun 2019 Framework/guidance
Supporting patient involvement in the development of new treatments Parkinson’s UK
04 Nov 2019 Book
Working Group Updates 2020
11 Mar 2020 Framework/guidance