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Parkinsons UK

Patient Advocacy Organization
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  • Info
  • People 4
  • Initiatives 12
  • Events 0
  • Resources 4

About the organization

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Parkinson's UK is here to make sure people have whatever they need to take back control – from information to inspiration. We want everyone to get the best health and social care. So we bring professionals together to drive improvements that enable people to live life to the full. Ultimately, we want to end Parkinson's. That's why we inspire and support the international research community to develop life-changing treatments, faster. And we won’t stop until we find a cure. Together we can bring forward the day when no one fears Parkinson's.

Mission : ➤Research
We influence and found groundbreaking research to advance understanding of Parkinson's and improve treatments
➤Information and support
Having Parkinson's isn't easy, but we provide expert information and support to help manage the condition
➤Support
We offer support and opportunities to live life to the full for everyone with Parkinson's, their families, and carers.
➤Campaigning for change
We raise awareness, change perceptions and work in partnership to drive better services

Vision : Our vision - our ultimate ambition - is to find a cure, and improve life for everyone affected by Parkinson's.

The hopes and views of people affected by Parkinson's has helped us identify this clear vision for the future.
We believe a cure will be found by overcoming the symptoms one by one.

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Website

https://www.parkinsons.org.uk/

Address

215 Vauxhall Bridge Road SW1V 1EJ London, United Kingdom

Conditions

Neurology/Parkinson's Disease

People

Claire Nolan

Research Involvement Manager

United Kingdom

Parkinsons UK

Natasha Ratcliffe

Research Involvement Manager

London, United Kingdom

Parkinsons UK

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Andrew Cassy

Patient research advocate for Parkinsons UK

Woodbridge, United Kingdom

Parkinsons UK

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AC

Andrew Cassy

PwP

United Kingdom

Parkinsons UK

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Initiatives

Research Support Network

Parkinsons UK

United Kingdom

Patient and Public Involvement Programme (PPIP)

Parkinsons UK

United Kingdom

Unmet needs in Parkinson's research

Parkinsons UK

United Kingdom

  PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,
+ 21

Global

  PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,
+ 4

Global

  Pledge to Patients

PFMD, The Synergist, National Health Council ,
+ 15

Global

Currently underway

  SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,
+ 23

Global

  Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,
+ 22

Global

Completed over one year ago

  The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,
+ 9

Global

Currently underway

  Patient Engagement How-To-Module for the Early Discovery and Preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,
+ 18

Global

Currently underway

  Supporting patient involvement in the development of new treatments Parkinson’s UK

Parkinsons UK

Global

Resources

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