Synapse - Patient Engagement Initiatives of Parkinsons UK

Parkinsons UK

Patient Advocacy Organization

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Initiatives

Research Support Network

Patient and Public Involvement Programme (PPIP)

Unmet needs in Parkinson's research

PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,

PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme, INVOLVE, DIA ,

Pledge to Patients

PFMD, The Synergist, National Health Council ,

SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme, EURORDIS - Rare Diseases Europe ,

Co-creation of the Patient Engagement "Meta-Framework"

PFMD, INVOLVE, DIA, Parkinson's Disease Foundation, Parkinsons UK ,

The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,

Patient Engagement How-To-Module for the Early Discovery and Preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,

Supporting patient involvement in the development of new treatments Parkinson’s UK

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