Patient Engagement Organization - Parkinsons UK - Initiatives

Parkinsons UK

Patient Advocacy Organization

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Initiatives

Research Support Network

Patient and Public Involvement Programme (PPIP)

Unmet needs in Parkinson's research

PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,

PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,

Pledge to Patients

PFMD, The Synergist, National Health Council ,

Synapse Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,

Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,

The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,

How-to guide for patient engagement in the early discovery and preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,

Patient Engagement Open Forum

PFMD, EUPATI, European Patients' Forum (EPF), Gilead Sciences ,

Supporting patient involvement in the development of new treatments Parkinson’s UK

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