About the organization
Basic details : The Patvocates Network is run by activists with decades of experience in patient advocacy. We provide valuable advice, insights, experiences and connections in supporting patient engagement strategy development, stakeholder identification, system readiness and project implementation in patient organisations and other stakeholders engaging with them - regulators, ethics committees, academic institutions and organisations and the pharmaceutical industry. We focus on strengthening patient advocates activities on multiple levels: supporting patients and peers, influencing health policy, and collaborating with stakeholders in research and development.
The Patvocates Network is registered in Germany and acting mainly on a European level.The Patvocates Network is both a patient-driven think tank and patient-focused consultancy in the triangle of patient advocacy, health policy and social media.
Mission : The Patvocates Network is run by activists with decades of experience in patient advocacy. We provide valuable advice, insights, experiences and connections in supporting patient engagement strategy development, stakeholder identification, system readiness and project implementation in patient organisations and other stakeholders engaging with them - regulators, ethics committees, academic institutions and organisations and the pharmaceutical industry. We focus on strengthening patient advocates activities on multiple levels: supporting patients and peers, influencing health policy, and collaborating with stakeholders in research and development.
The Patvocates Network is registered in Germany and acting mainly on a European level.
Vision : The Patvocates Network is both a patient-driven think tank and patient-focused consultancy in the triangle of patient advocacy, health policy and social media.
Contact information
| Website | http://www.patvocates.net/ |
|---|---|
| Address | Am Rothenanger 1b, 85521 - Riemerling, DE |
| Contact us for | General partnerships , Good practice sharing , Opportunities for patient engagement collaborations |
| Organization main contact email | info@patvocates.net |
People
Jan Geissler
Co-Founder
Munich, Germany
PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI
Commitments
Co-Founder
I have been running our online platform for German-speaking leukemia patients for more than 14 years, and have helped to found and grow the CML Advocates Network for more than 10 years. I am supporting CML patients on a daily basis. This keeps me close to the real need of real patients, over and above being a cancer survivor myself now for 16 years...
Work in progress