PFMD

Private Public Partnership

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About the organization

The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.

Mission : By partnering with patients to design and develop new solutions, we can co-create methods for them to achieve their health goals.

To pave the path for new innovations in research and lifecycle of medicine development, we intend to improve the patient experience by prioritizing patient preferences and values and creating synergies across interventions which involve the voice of the patient.

We partner WITH patients.

Vision : Transform the way in which we understand, engage, and partner with patients globally in the design and development of research and medicines by focusing on unmet patient needs. We are bringing together and synergizing disparate but complementary efforts that integrate the voice of the PATIENT across the lifecycle of medicine.

Organization primary focus : Driving patient engagement through co-creation, collaboration, culture change and knowledge sharing

Website

http://patientfocusedmedicine.org/

Address

Avenue Louise 523 1050 Brussels, Belgium

Contact us for

General partnerships, Good practice sharing, Opportunities for patient engagement collaborations, Speaking opportunities, Would you like to take part in PFMD's work streams? Contact the PFMD team to discuss more.

Organization main contact email

pfmd@thesynergist.org

Phone number

+32 2 613 1637

Conditions

Infections and Infectious Diseases/Coronavirus disease (COVID-19)

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People

Chi Pakarinen

Project Manager

Brussels, Belgium

The Synergist / PFMD

Nicholas Brooke

PFMD Executive Director

Bruxelles, Belgium

The Synergist / PFMD

Carina Prelucan

Program Coordinator

Belgium

The Synergist / PFMD

Nicole Wicki

Program Manager at The Synergist

Switzerland

The Synergist / PFMD

Ify Sargeant

Scientific editor

United Kingdom

The Synergist / PFMD / IsMedica

Lode Dewulf

Patient and Medical Affairs Consultant

Neerijse, Belgium

PFMD / Corvalus / Servier

Gary Finnegan

Editor

Ireland

The Synergist / PFMD

Danielle Barron

Editor-in-chief

Ireland

The Synergist / PFMD

Bernadette Hendrickx

Scientific Advisor to PFMD, CEO and Founder SAHB Consulting

Genval, Belgium

The Synergist / PFMD

Anne-Marie Hamoir

Head of Membership and Project Management

La Hulpe, Belgium

The Synergist / PFMD

Mathieu Boudes

PARADIGM coordinator (http://imi-paradigm.eu/)

Paris, France

European Patients' Forum (EPF) / PFMD

Nicola Bedlington

Secretary General at European Patients' Forum

Brussels, Belgium

European Patients' Forum (EPF) / PFMD / EUPATI

Jan Geissler

Co-Founder

Munich, Germany

PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI / CML Advocates Network - For Chronic Myeloid Leukemia Patient Group Advocates

Jeremy Jamar

Jeremy Jamar

Liège, Belgium

Elisabeth Oehrlein

Associate, Programs

Washington, United States

National Health Council / PFMD

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Initiatives

Piloting the Patient Engagement Quality Guidance

PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,

PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,

Pledge to Patients

PFMD, The Synergist, National Health Council ,

SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,

Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,

Reasonable agreements between patient advocacy and the pharmaceutical industry (RAPP)

Workgroup of European Cancer Patient Advocacy Networks (WECAN) ,

The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,

The Book of Good Practices

PFMD, The Synergist

Do's and Don'ts - practical tips for doing patient engagement

PFMD, The Synergist

Patient Engagement How-To-Module for the Early Discovery and Preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,

150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,

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Events

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Resources

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