SYNaPsE - SYNergising Patient Engagement

Resources

Patient Engagement Quality Guidance

27 Mar 2018

Global Patient Engagement Mapping and Networking Tool – Brochure

12 Jan 2018

Global Patient Engagement Mapping and Networking Tool – One Pager

12 Jan 2018

Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action - Article

12 Jan 2018

Reputation Management Toolkit

12 Jan 2018

Patient Focused Medicine Development in a nutshell - Video

12 Jan 2018

Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article

12 Jan 2018

Collaborative Patient Engagement: Mapping the Global Landscape - White Paper

12 Jan 2018

PFMD interviews and other videos - YouTube Channel

12 Jan 2018

SYNaPsE scientific poster

26 Jan 2018

Understanding stakeholders expectations for patient engagement - Qualitative Survey

28 Mar 2018

The Book of Good Practices

04 Apr 2018

Do's and Don'ts - practical tips for doing patient engagement

04 Apr 2018

Patient Engagement Frameworks Analysis: Conclusions, Learnings, Identified Needs (Developed in September 2016)

16 May 2018

Research on patient engagement (PE): A Literature Review and Framework Analysis

16 May 2018

SYNaPsE: Patient Engagement Global Landscape Mapping, Resources and Networking Tool - Whitepaper

14 Jun 2018

PFMD Infographic: What do Stakeholders expect from Patient Engagement: Are these expectations being met?

22 Jun 2018

ISPOR Barcelona 2018: Can Patient Involvement in Early Dialogues Increase the Value of the Advice Given?

12 Nov 2018

Scientific Poster on Co-creation of Patient Engagement Quality Guidance and Quality Criteria

13 Nov 2018 Other

Guiding Principles on Reasonable Agreements between Patient Advocates and Pharmaceutical Companies

19 Nov 2018

Reasonable agreements between patient advocacy and the pharmaceutical industry - presentation

20 Nov 2018

Podcast: How to Make Patient Involvement Sustainable Throughout Medicines Development

13 Jan 2019

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

07 Mar 2019

Piloting the Patient Engagement Quality Guidance

19 Mar 2019

Guiding Principles on Reasonable Agreements between Patients and Pharmaceutical Companies (Brochure)

20 Mar 2019

Reasonable Legal Agreements between Patient Advocates and Pharmaceutical Companies (Leaflet)

20 Mar 2019

Patient-Focused Drug Development: Update on Current and New Efforts

14 Jun 2019 Other

Advisory Board Reference Agreement between a patient advocate and a pharmaceutical company- v1.2

17 Jun 2019

Fair Market Value

17 Jun 2019

Synapse - your tool for patient engagement

21 Jun 2019 Article and blog post

Plain Language Summaries (PLS) of Publications Toolkit

10 Jul 2019 Plain Language Summaries (PLS)

Measuring the Impact of Patient Engagement Activities in Medicines R&D – A Way to Sustain Cultural Change?

10 Jul 2019 Other

Patient Engagement Quality Guidance Results and Learnings from Global Multistakeholder Pilots

10 Jul 2019 Learning and training

The Future of Combination Products in the EU What Can we Learn from Medicine Development & Delivery

10 Jul 2019 Other

Response to EMA's public consultation on regulatory science to 2025

24 Jul 2019 Other

GDPR and data protection, how this applies to trials, registries, big data and patient organisations data

13 Aug 2019 Other

Case study GenerationR Young Person’s Advisory Groups (YPAGs)

27 Aug 2019 Other

PEOF - Building global patient engagement framework

19 Sep 2019

PEOF - Patient Engagement; everyones responsibility-Online Session

19 Sep 2019

WORKSHOP 1 How to engage patients in early development and preclinical phases of medicines development

23 Sep 2019

WORKSHOP 3 The role of patients in co-designing Plain Language Summaries

23 Sep 2019

TOOLKIT FOR COMPENSATING PATIENTS AND PATIENT GROUPS FOR THEIR EXPERT INPUT

23 Sep 2019

LEGAL CONTRACTS BETWEEN PATIENTS, PHARMA AND RESEARCHERS - WHERE ARE WE AND WHAT IS MISSING?

23 Sep 2019 Framework/guidance

Engage Patients Today (We don't need an app)

16 Oct 2019

Engage Patients Today (We don't need an app)

16 Oct 2019

PE Open Forum Conference Report

07 Nov 2019 Other

Short report of existing patient engagement practices and processes

08 Nov 2019 Research report

D5.1 Report on the first open Patient Engagement Forum

08 Nov 2019 Other

Health Collaboration Guide

20 Dec 2019 Framework/guidance

Patient Engagement in Health Research: A How-to Guide for Patients

24 Dec 2019 Framework/guidance