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Santhera Pharmaceuticals

Pharmaceutical Company
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  • Info
  • People 1
  • Initiatives 4
  • Events 0
  • Resources 0

About the organization

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To develop treatments for neuromuscular and neuro-ophthalmological diseases that currently lack treatment options, such as Leber's hereditary optic neuropathy (LHON), Duchenne muscular dystrophy (DMD), congenital muscular dystrophy (CMD) and primary progressive multiple sclerosis (PPMS).We are passionate about improving patients’ quality of life and are well on the way to becoming leaders in rare mitochondrial and neuromuscular disorders.

Mission : To develop treatments for neuromuscular and neuro-ophthalmological diseases that currently lack treatment options, such as Leber's hereditary optic neuropathy (LHON), Duchenne muscular dystrophy (DMD), congenital muscular dystrophy (CMD) and primary progressive multiple sclerosis (PPMS).

Vision : We are passionate about improving patients’ quality of life and are well on the way to becoming leaders in rare mitochondrial and neuromuscular disorders.

Organization primary focus : Neuromuscular and neuro-ophthalmological rare diseases

Badges earned

Website

http://www.santhera.com

Address

Hammerstrasse 49 CH-4410 Liestal

Contact us for

General partnerships, Good practice sharing, Opportunities for patient engagement collaborations, Speaking opportunities, Participation in task forces and related initiatives, publications related to patient centricity and engagement within industry

Organization main contact email

vanessa.dosreisferreira@santhera.com

Conditions

Neurology/Across all conditions, Rare Diseases and Disorders/Across all conditions

People

Vanessa Ferreira

Patient Advocacy Manager

Santhera Pharmaceuticals

Initiatives

1st European Patient Groups Advisory Board meeting for Leber’s Hereditary Optic Neuropathy (LHON)

Santhera Pharmaceuticals

Europe

  Patient engagement in the regulatory submission phase

BioMarin, Janssen - Johnson & Johnson, PFMD ,
LP
+ 13

Global

Completed less than one year ago

  Patient engagement in co-creation of Patient Information Leaflets and other patient facing material.

PFMD, Takeda Pharmaceuticals, UCB, Canadian Arthritis Patient Alliance ,
WI
+ 20

Global

Completed less than one year ago

  Patient Engagement How-To Guide for the creation of Plain Language Summaries for scientific publications

Future Science Group, SAGE Publishing, Boehringer Ingelheim ,
LR
+ 20

Global

Completed less than one year ago

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