About the organization
Basic details : WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.The World Alliance of Pituitary Organizations (WAPO) is a self-governed non-profit organization created in order to unite the international pituitary patient community to push for optimal treatment and care for all patients with pituitary and related conditions worldwide. The goal of our organization is to share information, work together and support all pituitary patients’ advocates all around the world.
Mission : WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.
Vision : The World Alliance of Pituitary Organizations (WAPO) is a self-governed non-profit organization created in order to unite the international pituitary patient community to push for optimal treatment and care for all patients with pituitary and related conditions worldwide. The goal of our organization is to share information, work together and support all pituitary patients’ advocates all around the world.
Contact information
| Website | http://wapo.org |
|---|---|
| Address | Bulkstraat 18, 4196AW - Tricht, NL |
| Organization main contact email | mail@wapo.org |
| Phone number | +31 6 53865700 |
People
Muriël Marks
Member of the Board of Directors/Executive Director
- Organization
- The World Alliance of Pituitary Organizations (WAPO)
- Country
- Netherlands
Andrei Andrusov
Chairman of the Board
Sheila Khawaja
✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow
- Organization
- The World Alliance of Pituitary Organizations (WAPO)
- Country
- Italy
Initiatives
- Geographic focus
- Global
- Time line
- Completed over one year ago
- Geographic focus
- Global
- Time line
- Currently underway
- Geographic focus
- Global
- Time line
- Currently underway
Commitments
✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow
When I listen, I will make sure to understand the holistic aspect of each patient's journey and their respective family and friends. Hearing a sound is not the same as listening to a voice.
Work in progress
✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow
I will ensure that patients who have spoken also have an opportunity to speak their minds and put forward ideas and potential solutions for the community. I will offer my support to connect them with the right people or create teams so their ideas can be developed.
Work in progress
✔️ Translator, IT to EN | Business English Language Trainer | | Rare Disease Patient Advocate | EURORDIS Fellow
Transparency is the key to any relationship and this is even more crucial when it comes to our health, treatment options and understanding the complexity of stakeholder relations. I will ensure, to the best of my capabilities, to share as much information and give a voice to those patients who are unable to speak out.
Work in progress