About the organization
Mission : Passionate about enabling people with severe diseases to live the life they choose
We have a shared ambition to transform the lives of people living with severe diseases. We focus on neurology and immunology disorders – putting patients at the centre of our world.
Vision : Inspired by patients, driven by science. Everything we do starts with one simple question: “How can we create more value for people living with severe diseases?".
Badges earned
Website
Address
Allée de la Recherche, 60 1070 Brussels, Belgium
People (25)
Jodie Allen
Associate Director / Customer Experience Innovation / Beyond-the-Pill / Healthcare
Brussels, Belgium
Alice Yeo
Patient & Stakeholder Engagement Lead, Global Marketing Practice
Decatur, United States
Initiatives (20)
Country rules of patient engagement
PE Stakeholder Expectation Matrix
Synapse Patient Engagement Global Landscape, Expert Network and Repository
Co-creation of the Patient Engagement "Meta-Framework"
Patient engagement in the regulatory submission phase
Resources (7)
Industry Representatives Release Call-To-Action On Patient Insight Compensation
31 May 2019
Working with patients and patient organisations - a sourcebook for industry
28 Jun 2019 Framework/guidance
Patient Compensation Tools
30 Jun 2020 Framework/guidance
Patient Engagement by Pharma—Why and How? A Framework for Compliant Patient Engagement
20 Jul 2020 Framework/guidance
Informed Consent Feedback
20 Jul 2020 Article and blog post
Establishing a patient publication steering committee: A case study with insights for medical writers
19 Jan 2021 Plain Language Summaries (PLS)
Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study
26 Feb 2021 Publication