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PEOF 2020-How to engage patients in the early stages-WG1-Slides and Recording

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Copy this link to access the recording of the session: https://youtu.be/jXBR0yzSxG0 During the workshop, it was presented the practical how-to guide co-created by a multistakeholder group to help stakeholders engage with patients in the early research stages. The very first “prototype” of this how-to was presented in the previous PEOF (in September 2019) to gather first thoughts and ideas to include in the final guide. This how-to guide has been structured in a way that it can be used as a tool that will guide you through the planning, preparation, and organization of patient engagement activities and setting up meaningful and long term partnerships.
Download filefile size 1.6 MB

Development phases

Research and discovery

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People

Chi Pakarinen

Project Manager

Brussels, Belgium

The Synergist / PFMD

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Oleksander Gorbenko

Global Patient Affairs Medical Lead

United Kingdom

Ipsen pharma

Natasha Ratcliffe

Research Involvement Manager

London, United Kingdom

Parkinsons UK

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OB

Oana Bernard-Poenaru

Oana BERNARD

Suresnes, France

Servier

Carole Scrafton

Carole Scrafton

Sunderland, United Kingdom

FibroFlutters

MW

Merlin Williams

Nick Hicks

DF

David Feldman

Medical Project Director at National Kidney Foundation

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PFMD

Private Public Partnership

Global
24 Users
27 Initiatives
79 Resources

Initiatives

  Patient Engagement How-To-Module for the Early Discovery and Preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,
+ 18

Global

Currently underway

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25

Jun09:00 AM

23

Nov09:00 AM

Patient Engagement Open Forum 2020

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