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Reasonable agreements between patient advocacy and the pharmaceutical industry - presentation

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  • People 4
  • Organizations 3
  • Initiative 1
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Collaboration between pharmaceutical companies and patient advocates often requires both parties to sign contracts that define the terms and conditions of the collaboration, covering such matters as confidentiality, intellectual property, copyright, data protection, compensation and other responsibilities of one or both parties. The project is led by Myeloma Patients Europe on behalf of the Workgroup of European Cancer Patient Advocacy Networks (WECAN), in close partnership with Patient Focused Medicine Development (PFMD). It builds on an extensive consensus process of a multi- stakeholder workgroup of patient advocates and legal experts from different pharmaceutical companies, supported by independent legal experts from academia and a legal firm.
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People (4)

Nicholas Brooke

PFMD Executive Director

Bruxelles, Belgium

The Synergist / PFMD

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Jan Geissler

Co-Founder

Munich, Germany

PFMD / Patvocates / Leukemia Patient Advocates Foundation / EUPATI / CML Advocates Network - For Chronic Myeloid Leukemia Patient Group Advocates

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Eupati

Marc Boutin

Global Head of Patient Engagement & Advocacy

United States

Novartis

Ana Vallejo

Communications Manager at Myeloma Patients Europe (MPE)

Spain

Myeloma Patients Europe (MPE)

Organizations (3)

National Health Council

Patient Advocacy Organization

United States
3 Users
14 Initiatives
43 Resources

PFMD

Private Public Partnership

Global
27 Users
33 Initiatives
82 Resources

Myeloma Patients Europe (MPE)

Patient Advocacy Organization

Europe
1 User
3 Initiatives
11 Resources

Initiatives (1)

  Reasonable agreements between patient advocacy and the pharmaceutical industry (RAPP)

Workgroup of European Cancer Patient Advocacy Networks (WECAN) ,
+ 3

Global

Completed over one year ago

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