Gain an understanding of patient advocacy communities, changing capacities and expectations, and emerging best practices in fostering partnerships between life science organizations and patient organizations.
Explain the rationale for partnering with patients
Describe different types of patient organizations and existing resources to help identify those whose objectives and capabilities are best positioned to align with stated project goals
List factors to consider in timing the approach to patient organizations
Draw upon existing open source resources to reduce uncertainty about terms of and conditions for partnering activities
Identify criteria for meaningful, quality engagements with patient organizations to guide interactions and contracting
List common challenges with partnering with patient organizations and ways to mitigate them