Who We Are To fulfill its mission, CANCER101, founded in 2002: ➤Meets the cancer patient and caregiver on the front line to help guide the next steps ➤Personalizes the patient experience…one patient at a time through tailored education based on personal preferences ➤Provides innovative tools and resources patients and caregivers need to manage their cancer in partnership with their healthcare team ➤Creates a comprehensive roadmap for patients by filtering the “garbage from gold” so that patients can access important information when they need it most
The Society for Participatory Medicine is a 501(c)(3) not-for-profit organization devoted to promoting the concept of participatory medicine, a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. Our Guiding Principles: To guide patients and caregivers to be actively engaged in their health and health care experiences. To guide health professional practices where patient experience and contribution is an integral goal of excellence. To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care. The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.
Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article
12 Jan 2018
Multinational coalition focus on co-creation of meta-framework to benefit patients globally - Video
12 Jan 2018
I commit to co-designing solutions with patients and their caregivers by first working with them to identify and prioritize the issues. I also commit to empowering patients and caregivers to participate in co-design projects by providing them with coaching, tools and resources.Work in progress
I commit to communicating with patients and their caregivers in a manner that translates high science into layman's terms and incorporate methodology such as "teach back" to ensure that information conveyed is understood.Work in progress