Organizations
Healthy lungs and against lung diseasesTo promote research into lung diseases, medicine development and local contact with patients. Patients are involved in setting the research agenda, evaluating the research applications and advising on which applications should be funded. We are a group of patient advocates that are part of many research projects in the Netherlands and EU on lung diseases .
Social media
Initiatives
Resources
Commitments
Patient advocate/experience expert
I will listen to my fellow patients and try and put forward their needs, questions, wishes and opportunities in as many places and to as many people as possible.
Work in progressPatient advocate/experience expert
I will work together with others to create dialogue on an equal basis, each with our own expertise to create a new reality where patients are an integral part of co-creating the future in care, medicine, medical devices, HTA, CEA and wherever else it is needed or necessary.
Work in progressPatient advocate/experience expert
I will engage, inform, empower as many patients as I can to take part in all initiatives where we are asked to participate and will try and get patients involved where the patient voice is not yet heard.
Work in progress