Skilled professional in patient engagement in health care specializing in building collaborations between researchers and people with chronic disease and their care partners to develop better clinical trials. Expertise includes consulting and advising pharmaceutical companies, academic researchers and government organizations in patient engagement, volunteer training, support and organization and building communication skills between scientists and lay audiences.Interests include innovative programs that utilize community organizing and health education to speed research, working with aging populations with neurological disorders, international health care and women's issues.
To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.
Patients as Partners US
DIA DIRECT: Are We Listening Enough to Patients? Patient-Focused Medicines Development During COVID-19
Director, Community Engagement
I commit to co-creating new models of patient engagement in research with patients. Together we can ensure patient needs and priorities are incorporated into all aspects of research.Work in progress