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Chi Pakarinen

Programme Manager
  • Overview
  • Organization 1
  • Initiatives 20
  • Events 5
  • Resources 16
  • Commitments 2

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Chi is responsible for the development of Patient Focused Medicines Development (PFMD) and IMI-PARADIGM initiatives. Together with the team, Chi drives co-creation activities, connects and engages with stakeholders within and beyond the PFMD network, and coordinates sub-projects within both initiatives, bringing collaborative leadership to build methodologies and tools and make patient engagement happen on collective platforms (with more than 90 member organizations combined). Chi has a Master degree in International Relations from the University of Southern Denmark and a Bachelor degree in Business Administration from Haaga-Helia, University of Applied Sciences, in Finland. Her past work has enabled her to gain experience in collaborating with partners from various backgrounds and expertise, as well as working with large volunteer groups innovating with them in delivering focused outcomes like inspiring events to an audience of hundreds.

Organizations

The Synergist

The Synergist runs programmes aimed at solving challenges which others ignore or have been unable to resolve. Our approach is a bit different. We’re not issue experts. We focus primarily on bringing the most important stakeholders together and building shared value, rather than trying to do it all ourselves. Given the complexity of the world we live in and the challenges we face, we’re convinced there is no better way.

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Stakeholder Groups

Medical device companies or industry

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Initiatives (20)

  PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,
+ 4

Global

  Pledge to Patients

PFMD, The Synergist, National Health Council ,
+ 17

Global

Currently underway

  Synapse Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,
+ 25

Global

Currently underway

  IMI PARADIGM

Innovative Medicines Initiative IMI, The Synergist ,
+ 44

Europe

Completed less than one year ago

  The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,
+ 9

Global

Currently underway

  The Book of Good Practices

PFMD, The Synergist

Global

  PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,
+ 23

Global

Currently underway

  Do's and Don'ts - practical tips for doing patient engagement

PFMD, The Synergist

Global

Completed over one year ago

  Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,
+ 24

Global

Completed over one year ago

  150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,
+ 7

Global

Currently underway

  PE Industry training

PFMD, Servier, EUPATI, EURORDIS - Rare Diseases Europe ,
BV
+ 12

Global

Currently underway

  How-to guide for patient engagement in the early discovery and preclinical phases

National Kidney Foundation, Ottawa Hospital Institute of Research ,
+ 34

Global

Completed less than one year ago

see all

Events (5)

18

Sep09:00 AM

19

Sep05:00 PM

PE Open Forum 2019

+ 6
Brussels, Belgium

13

Nov09:00 AM

14

Nov04:00 PM

1st Asia-Pacific Patients Congres

15

Nov09:00 AM

15

Nov05:00 PM

PFMD Board Meeting

+ 3
Belgium

04

Dec03:00 PM

04

Dec04:00 PM

High Impact Virtual Engagements webinar series | Episode 1

05

Feb03:00 PM

05

Feb04:00 PM

High Impact Virtual Engagements webinar series | Episode 3

Online
see all

Resources (16)

+ 4

Scientific Poster on Co-creation of Patient Engagement Quality Guidance and Quality Criteria

13 Nov 2018 Other

+ 7

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

07 Mar 2019

+ 6

WORKSHOP 1 How to engage patients in early development and preclinical phases of medicines development

23 Sep 2019

PE Open Forum Conference Report 2019

07 Nov 2019 Other

+ 1

D1.1 Survey analysis report on stakeholder-specific preferences, needs and expectations

08 Nov 2019 Research report

+ 6

Working Group Updates 2020

11 Mar 2020 Framework/guidance

OB
+ 5

PEOF 2020-How to engage patients in the early stages-WG1-Slides and Recording

03 Jul 2020 Other

DH
+ 3

PEOF 2020- Involving patients in COA strategy and development-Recording and Slides

29 Sep 2020 Video

If Medicines Could Talk- Patient Focused Medicines Development - Early Stage Patient Engagement

16 Oct 2020 Podcast

+ 2

Patient Engagement Agreements Explained

22 Oct 2020 Framework/guidance

High Impact Virtual Engagements Webinar Series | Episode 1 recording

12 Jan 2021 Learning and training

High Impact Virtual Engagements Webinar Series | Episode 2 recording

28 Jan 2021 Learning and training

Commitments (2)

Chi Pakarinen

Programme Manager

I will find a patient and spend time with them in the next 6 months to learn about how I can take their needs into consideration more in my role when I arrange meetings that involve patients.

Completed
Chi Pakarinen

Programme Manager

I will take my learnings from listening to patients and improve my communication with patients that are involved with PFMD work streams; to take their needs as much as possible into account with the content and timing of the communications.

Completed

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