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Karlin Schroeder

Associate Vice President, Community Engagement
  • Overview
  • Organization 1
  • Initiatives 4
  • Events 3
  • Resources 2
  • Commitment 1

Read more

Skilled professional in patient engagement in health care specializing in building collaborations between researchers and people with chronic disease and their care partners to make research more efficient and effective. Expertise includes methodology and metrics for patient engagement, consulting and advising pharmaceutical companies, academic researchers and government organizations in patient engagement, training patients for collaborations, and building communication skills between scientists and lay audiences. Interests include community based participatory research, comparative effectiveness research, health literacy, designing patient reported outcomes tools, Quality by Design and ensuring diverse and underserved populations are included in research decision making and as study participants. 

Organizations

Parkinson's Disease Foundation

To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.

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Conditions

Neurology/Parkinson's Disease

Stakeholder Groups

Patient organisation

Initiatives (4)

  The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,
+ 9

Global

Currently underway

  150+ PE activities to inform PE Quality Guidance's how to modules

PFMD, University of East Anglia, Canadian Arthritis Patient Alliance ,
+ 7

Global

Currently underway

  Patient engagement in the regulatory submission phase

BioMarin, Janssen - Johnson & Johnson, PFMD ,
LP
+ 14

Global

Completed less than one year ago

  Patient engagement in co-creation of Patient Information Leaflets and other patient facing material.

PFMD, Takeda Pharmaceuticals, UCB, Canadian Arthritis Patient Alliance ,
WI
+ 20

Global

Completed less than one year ago

Events (3)

19

Aug10:00 AM

21

Aug02:30 PM

Patients as Partners US

KG
MA
+ 13

21

Oct10:00 AM

21

Oct11:00 AM

DIA DIRECT: Are We Listening Enough to Patients? Patient-Focused Medicines Development During COVID-19

07

Apr09:00 AM

09

Apr06:00 PM

8th annual Patients as Partners

+ 7
Online

Resources (2)

KW

PatientsEU2021-First-of-Its-Kind Collaborative Initiative: Scaling a Patient Engagement Training Program Co-Created by Pharma and Patients

27 Jan 2021 Learning and training

DL
+ 61

Infographic of Patient Engagement Multi-Stakeholder Contributors' Network

04 Mar 2021 Fact sheet

Commitments (1)

Karlin Schroeder

Associate Vice President, Community Engagement

I commit to co-creating new models of patient engagement in research with patients. Together we can ensure patient needs and priorities are incorporated into all aspects of research.

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