Skilled professional in patient engagement in health care specializing in building collaborations between researchers and people with chronic disease and their care partners to make research more efficient and effective. Expertise includes methodology and metrics for patient engagement, consulting and advising pharmaceutical companies, academic researchers and government organizations in patient engagement, training patients for collaborations, and building communication skills between scientists and lay audiences. Interests include community based participatory research, comparative effectiveness research, health literacy, designing patient reported outcomes tools, Quality by Design and ensuring diverse and underserved populations are included in research decision making and as study participants.
Organizations
To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.
Badges
Conditions
Stakeholder Groups
Patient organisation
Initiatives (4)
150+ PE activities to inform PE Quality Guidance's how to modules
Patient engagement in the regulatory submission phase
Patient engagement in co-creation of Patient Information Leaflets and other patient facing material.
Events (3)
Resources (2)
PatientsEU2021-First-of-Its-Kind Collaborative Initiative: Scaling a Patient Engagement Training Program Co-Created by Pharma and Patients
27 Jan 2021 Learning and training
Infographic of Patient Engagement Multi-Stakeholder Contributors' Network
04 Mar 2021 Fact sheet
Commitments (1)
Associate Vice President, Community Engagement
I commit to co-creating new models of patient engagement in research with patients. Together we can ensure patient needs and priorities are incorporated into all aspects of research.
Work in progress