Skilled professional in patient engagement in health care specializing in building collaborations between researchers and people with chronic disease and their care partners to make research more efficient and effective. Expertise includes methodology and metrics for patient engagement, consulting and advising pharmaceutical companies, academic researchers and government organizations in patient engagement, training patients for collaborations, and building communication skills between scientists and lay audiences. Interests include community based participatory research, comparative effectiveness research, health literacy, designing patient reported outcomes tools, Quality by Design and ensuring diverse and underserved populations are included in research decision making and as study participants.
To invest in promising scientific research that will end Parkinson’s disease and improve the lives of people with Parkinson’s, and their families, through improved treatments, support and the best care.A world without Parkinson's disease.
Patients as Partners US
DIA DIRECT: Are We Listening Enough to Patients? Patient-Focused Medicines Development During COVID-19
8th annual Patients as Partners
Associate Vice President, Community Engagement
I commit to co-creating new models of patient engagement in research with patients. Together we can ensure patient needs and priorities are incorporated into all aspects of research.Work in progress