The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.
To help you move from core values to impactTo deliver value on issues that matter
Our vocation is to be committed to therapeutic progress for the benefit of patients in connection with health professionals, in order to transmit to future generations a world where health is accessible to the greatest number.We put patients first. They are at the heart of each of our activities. We believe that the best way to meet their current and future needs is to work together. All of our considerations, decisions, and actions—from basic research to getting a medicine to market—are governed by this central position of patients.
Patient Summit Europe
PFMD Board Meeting
Next Innovation Week/Can technology improve patient centricity? – What have we learnt from COVID 19?
Culture and Process Change as a Priority for Patient Engagement in Medicines Development - Article
12 Jan 2018
Partnering With Patients in the Development and Lifecycle of Medicines: A Call for Action - Article
12 Jan 2018
I will listen to people facing or living with a health challenge to understand their needs and perspectives. I will continue to spend time with them to learn from them. When consulted as physician, I will spend more time listening than talking. Also in my other roles I will seek their perspective and input before selecting, developing and delivering. When listening, I will seek to listen actively beyond the purely physical or medical dimension.Work in progress
I will co-decide on the therapeutic approach with the people who consult me as physician, taking into account their perspectives and needs beyond the purely physical or medical. I will also work with people facing or living with a health challenge when selecting, developing and delivering my contributions as consultant and advisor or employee.Work in progress
Through feedback I will make sure that any explanations given to or therapy agreed with people who consult me is in fact understood by them. In the same way I will make sure that they understand the reason behind any suggestions that I make. When writing or presenting I will use understandable language by ensuring patient and layperson input and feedback. Last but not least, I will continue to be a vocal and passionate advocate for patient engagement and for patient focused medicines development on issues that matter to people facing or living with a health challenge.Work in progress