The European Patients’ Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Our members represent specific chronic disease groups at EU level or are national coalitions of patients.
The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.
PE Open Forum 2019
Patients as Partners Europe
DIA 2019 Global Annual Meeting
What do stakeholders expect from patient engagement: Are these expectations being met? - Report
03 Sep 2018
Report of the Internal consultation on patient engagement sustainability (Expert Patient and Researcher EURORDIS Summer School 2018)
08 Nov 2019 Other
Evaluating the “return on patient engagement initiatives” in medicines research and development: A literature review
01 Feb 2020 Publication
Patient engagement in medicines development: Recommendations on how to find the right match for the right patient engagement activity
22 Oct 2020 Framework/guidance