Organizations
Parkinson's UK is here to make sure people have whatever they need to take back control – from information to inspiration. We want everyone to get the best health and social care. So we bring professionals together to drive improvements that enable people to live life to the full. Ultimately, we want to end Parkinson's. That's why we inspire and support the international research community to develop life-changing treatments, faster. And we won’t stop until we find a cure. Together we can bring forward the day when no one fears Parkinson's.
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Initiatives (2)
How-to guide for patient engagement in the early discovery and preclinical phases
Events (3)
27
28
Patients as Partners Europe
25
26
Patients as Partners Europe – Connecting Globally for Patients in Clinical Research
26
26
Patients as Partners Europe – Session on Newly Reported PFMD Guidelines on Incorporating the Patient Voice in the Pre-Clinical Phase
Resources (6)
Patient and public involvement: Guidance for researchers
20 Dec 2018
WORKSHOP 1 How to engage patients in early development and preclinical phases of medicines development
23 Sep 2019
Supporting patient involvement in the development of new treatments Parkinson’s UK
04 Nov 2019 Book
Working Group Updates 2020
11 Mar 2020 Framework/guidance
If Medicines Could Talk- Patient Focused Medicines Development - Early Stage Patient Engagement
16 Oct 2020 Podcast
Commitments (6)
Research Involvement Manager
I will consult with our contributors to capture their experiences and learn what they want our Patient and Public Involvement programme to look like moving forward.
Work in progress
Research Involvement Manager
I will work with our contributors to develop training and resources to support them in their role.
Work in progress
Research Involvement Manager
I will share our achievements and ongoing work with the Research Support Network and the wider Parkinson's community.
Work in progress