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Nicholas Brooke

PFMD Executive Director
  • Overview
  • Organizations 2
  • Initiatives 16
  • Events 11
  • Resources 22
  • Commitments 5

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Societal problems come about through a combination of actions and oversights by all types of players — government, public agencies, businesses, non-profits and affected citizens. And they can only be solved through coordinated efforts amongst these same players. Nicholas Brooke is founder and Executive Director of The Synergist, an incubator that brings key players together in people-public-private partnerships with the express aim of solving significant societal problems through collective action. Under Nicholas’ leadership, The Synergist acts as a backbone, providing vision, strategy, stakeholder alignment and execution on multiple international, multi-stakeholder programmes. As Patient Focused Medicine Development (PFMD.org) Executive Director, Nicholas develops collaborative leadership to build collective patient engagement across the lifecycle of medicine. Nicholas was previously CEO of an award-winning digital agency, managing a team of 45 people providing cutting-edge digital strategy to global corporations across multiple sectors. His deep understanding of how digital can facilitate and accelerate collective action drove him to see the potential for an independent organisation that can enable partnerships and drive them to jointly solve societal challenges. Working with key players from across the public-private spectrum, The Synergist currently manages five shared value programmes: The Pregnancy and Medicine Initiative, Break Dengue, The Alliance for Maternal Health Equality, Patient Focused Medicine Development and Safe Motherhood Week.

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The Synergist

The Synergist runs programmes aimed at solving challenges which others ignore or have been unable to resolve. Our approach is a bit different. We’re not issue experts. We focus primarily on bringing the most important stakeholders together and building shared value, rather than trying to do it all ourselves. Given the complexity of the world we live in and the challenges we face, we’re convinced there is no better way.

PFMD

The Patient Focused Medicines Development (PFMD) group, established in 2015, is an independent multinational coalition, managed in collaboration with The Synergist. Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development, thereby speeding up the creation and implementation of an effective, globally standardized framework. PFMD seeks to have a balanced representation of stakeholders to ensure transparency, inclusiveness, and credibility. Stakeholders include patients and patient organizations across diverse areas of health and industry. We also intend to invite regulators, payers and other professional organizations to the global group to ensure diversity of perspectives.

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Initiatives (16)

  PE Stakeholder Expectation Matrix

PFMD, EURORDIS - Rare Diseases Europe, Merck Sharp & Dohme (MSD) ,
+ 4

Global

  SYNaPsE Patient Engagement Global Landscape, Expert Network and Repository

PFMD, Merck Sharp & Dohme (MSD), EURORDIS - Rare Diseases Europe ,
+ 24

Global

  IMI PARADIGM

Innovative Medicines Initiative IMI, The Synergist ,
+ 43

Europe

Completed less than one year ago

  Share4Rare

Horizon 2020, The Synergist, Sant Joan de Déu Research Foundation ,
+ 1

Global

Currently underway

  Reasonable agreements between patient advocacy and the pharmaceutical industry (RAPP)

Workgroup of European Cancer Patient Advocacy Networks (WECAN) ,
+ 3

Global

Completed over one year ago

  The Patient Engagement Quality Guidance (PEQG)

PFMD, The Synergist, National Health Council ,
+ 9

Global

Currently underway

  The Book of Good Practices

PFMD, The Synergist

Global

  Do's and Don'ts - practical tips for doing patient engagement

PFMD, The Synergist

Global

Completed less than one year ago

  PFMD - Patient Focused Medicines Development

The Synergist, PFMD, National Health Council ,
+ 22

Global

Currently underway

  Pledge to Patients

PFMD, The Synergist, National Health Council ,
+ 16

Global

Currently underway

  Co-creation of the Patient Engagement "Meta-Framework"

PFMD, NIHR INVOLVE, Drug Information Association (DIA) ,
+ 23

Global

Completed over one year ago

Patient Engagement and Patient Experience Data Roadmap

PFMD
+ 2

Global

Currently underway

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Events (11)

19

Nov01:00 PM

21

Nov01:30 PM

Partnerships in Clinical Trials Europe Conference (PCT)

JB
Barcelona, Spain

15

Oct08:00 AM

16

Oct03:00 PM

Patient Summit Europe

IB
+ 9
London, United Kingdom

18

Sep09:00 AM

19

Sep05:00 PM

PE Open Forum 2019

+ 6
Brussels, Belgium

15

Oct09:00 AM

15

Oct05:00 PM

28th EURORDIS Round Table of Companies Workshop

+ 3
Barcelona, Spain

02

Oct09:00 AM

02

Oct04:00 PM

Inaugural Roundtable Summit - Integrating Patient Engagement into Healthcare and Access to Medicines in the Asia Pacific Region

Singapore, Singapore

15

Nov09:00 AM

15

Nov05:00 PM

PFMD Board Meeting

+ 3
Belgium

31

Mar08:00 AM

02

Apr02:00 PM

EYEFORPHARMA BARCELEONA 2020

Spain

23

Jun08:00 AM

27

Jun12:00 PM

DIA 2019 Global Annual Meeting

JB
+ 2
California, United States

10

Jun07:00 PM

10

Jun08:00 PM

Global Patient Advocacy in the COVID Era: What Is the Future of Patient Advocacy around the World?

RD

29

Jun07:00 PM

29

Jun08:30 PM

2020 CoRE Webinar Series: COVID-19’s Impact on Patient Engagement in East Asia

15

Sep09:00 AM

16

Sep04:00 PM

Pharma & Patient Europe 2020

IB
+ 3
see all

Resources (22)

+ 2

Understanding stakeholders expectations for patient engagement - Qualitative Survey

28 Mar 2018

+ 1

Patient Focused Medicine Development in a nutshell - Video

12 Jan 2018 Article and blog post

+ 5

What do stakeholders expect from patient engagement: Are these expectations being met? - Report

03 Sep 2018

Patient Engagement Quality Guidance

27 Mar 2018

The Book of Good Practices

04 Apr 2018

Do's and Don'ts - practical tips for doing patient engagement

04 Apr 2018

ISPOR Barcelona 2018: Can Patient Involvement in Early Dialogues Increase the Value of the Advice Given?

12 Nov 2018

+ 4

Scientific Poster on Co-creation of Patient Engagement Quality Guidance and Quality Criteria

13 Nov 2018 Other

+ 1

Reasonable agreements between patient advocacy and the pharmaceutical industry - presentation

20 Nov 2018

+ 1

Podcast: How to Make Patient Involvement Sustainable Throughout Medicines Development

13 Jan 2019

+ 7

Co-creation of patient engagement quality guidance for medicines development: an international multistakeholder initiative

07 Mar 2019

Guiding Principles on Reasonable Agreements between Patients and Pharmaceutical Companies (Brochure)

20 Mar 2019

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Commitments (5)

Nicholas Brooke

PFMD Executive Director

Build a platform (PFMD.org) to allow the alliance of all parties to take a collaborative, open and non-competitive approach to make patient engagement a reality, solving together what nobody can solve on his own.

Completed
Nicholas Brooke

PFMD Executive Director

I will work closely with PFMD patients and patient organisations members of PFMD, those of today and new ones, to understand what are the barriers they face

Work in progress
Nicholas Brooke

PFMD Executive Director

I will seek for opportunities to build on new communication tools or happening to allow patients an easier and equitable access to information, tools and rights they have

Work in progress

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